LA Story – A Life of Vision and AMD

Growing up in Los Angeles, Leah Bernstein always loved movies and made it her goal to work in the entertainment industry. She took typing, shorthand and bookkeeping in school, and when she was turned 16, her sister’s friend got her a job working from 5 pm to midnight at MGM Studios.

vision and amd
Helga Esteb / Shutterstock.com
“I remember Judy Garland and Mickey Rooney playing outside the window, and Katharine Hepburn was always trying to get me to play tennis,” recalls Bernstein, now 93 years old.

“I made enough money at MGM to go to Woodbury’s Business College and become an executive secretary,” she says. She spent the rest of her career working with entertainment-industry executives, including Irving Fein, who managed Jack Benny; renowned animator Ralph Bakshi; and producer/director Stanley Kramer, who was best known for The Defiant Ones, Judgment at Nuremberg, Guess Who’s Coming to Dinner and It’s a Mad, Mad, Mad, Mad World. She worked with Kramer on 28 films, counting luminaries such as Sidney Poitier, Bobby Darin and Vivien Leigh among her friends, before she retired at age 69.

Vision and AMD

Since then, Bernstein spends time with her eight great-great nieces and nephews and has been a dedicated volunteer for organizations such as Cedars-Sinai Medical Center, the Los Angeles County Museum of Art and the Beverly Hills Public Library, where she regularly attends the Macular Degeneration Partnership’s monthly support group.

“I go to the meetings every month; I like to hear what other people are going through,” she says. “Mostly, though, I love hearing about the latest research. I would like to improve my eyesight, and I’m hoping they will come up with eye drops for my dry eyes.”

Bernstein started wearing glasses in her early 40s, and since being diagnosed with age-related macular degeneration, she’s had cataract surgery in both eyes. “That didn’t help, but I do take the vitamins given to me by my retina doctor twice a day. I’m hoping those might be keeping my macular degeneration from getting worse,” she says.

She’s given up driving and now lives in an assisted-living facility, where she really hates the food. She has a little computer “for looking things up,” and she gets by with two pairs of glasses and a magnifier for reading.

“I wish I could read better. I really wish my eyes were better,” Bernstein says. “I do watch television. I see it — not as you see it — but I can see it with my distance glasses. And of course, I watch movies on my DVD player.”

7/7/15

Lauren HauptmanLauren Hauptman
Lauren Hauptman INK

Is There Life After Vision Loss?

Vision loss does not have to result in isolation and withdrawing from rewarding and enjoyable activities that life has to offer. Jim Vorndran, one of my long-time low vision patients who suffers from macular degeneration wrote: “The greatest obstacle is fear…fear of the unknown and of apparent helplessness. It is difficult to admit to myself and to others that I can no longer do the things I used to do with almost no effort. But once I have begun to embrace this, I am ready to begin to learn to walk once again. “

Is There Life After Vision Loss?

Jim wrote: “Vision loss can be a source of frustration but I also see it as an opportunity, and in some strange way as a gift. It has slowed me down so that I can pay greater attention to what is going on around me.”

living with vision loss
Susan F. was able to start reading magazines after simple reading glasses (stronger for low vision patients) and low vision therapy.
In my ten years of providing low vision care, many patients receive the devastating news of potentially progressive vision loss without being presented with resources or support, and families often do not know how to cope. Their determination to maintain or improve their quality of life is often a source of inspiration.

Macular degeneration is the primary cause of vision loss in the US, followed by diabetic retinopathy and glaucoma. There are steps to take in order to continue enjoying daily life and reduce the isolation that vision loss can bring.

Following is a list of six steps to follow in order to maintain quality of life and to be pro-active in finding ways to cope.

  1. Be informed about your eye condition
  2. Learn as much as possible about your eye condition. Ask your eye doctor what level of vision you have and where you see best in your field of view. Macular degeneration results in loss of central vision while the peripheral vision is still healthy. Glaucoma has the opposite effect. Ask about the prognosis of your condition, treatment options (both medical and rehabilitative),ways to slow down the progression, and current research and clinical trials in this field. Be proactive about how the progression of your condition is affecting your vision. Most eye doctors will have written materials and you can read these on your own, or ask a spouse or family member to read it to you. This will help them to understand your condition as well.

  3. Schedule a low vision evaluation
  4. Many of my patients and their families had never heard about low vision care. Low vision is defined as “vision which is insufficient to do what you want to do”. Most will mention that their glasses are not

    living with vision loss
    Anibal was a vision therapy patient who was able to start walking without a cane after O & M training. Feels more independent. Yellow contrast glasses help.
    working anymore. Vision loss reduces or eliminates the ability to do normal activities of daily living like reading, watching TV, recognizing faces, or driving. Ask your specialist for a referral to a low vision doctor who can help. A low vision specialist can enhance your remaining vision by recommending special glasses, proper lighting, and also low vision therapy to maximize the remaining vision you have. They can help establish a treatment plan taking into account your insurance and other factors.

  5. Establish a “Wish List”
  6. Vision loss does not have to mean discontinuing everything you did before. It might just mean a different way of doing things. It is first important to write a list of things you would like to be able to do. The top three are usually: reading, driving, and watching TV. Other wish list items will include sewing, playing bridge, cooking, etc. Once you write this list, you can then track down the resources that will help you fulfill this.

    For example, while a handful of low vision patients may still be able to continue driving (to be determined by trained specialists), others will need transportation resources such as Access, talking devices, magnification devices or software, books on tape, etc.

  7. Low vision devices and vision rehabilitation
  8. Some of these devices and/or low vision therapy can help you fulfill your wish list. These include simple hand-held lighted magnifiers to more sophisticated assistive-technology devices such as a CCTV, and prescription telescopes. A low vision specialist can help determine if you are a candidate for low vision therapy, or if one of these devices would be appropriate and what your insurance would cover.

  9. Community resources and volunteering
  10. Support groups, such as the Macular Degeneration Partnership, can be a helpful resource to share and gain experiences from others who are coping with the same condition. One of my patients, Bonnie D., started a support group at her church, when she realized that several others also had AMD. It was successful, and they met once a month, learning from each other.

    Some people also find rewarding experiences in volunteering to help others. One patient goes to a nursing home via public transportation twice a month to sit with those who are bedridden and accompany them. She said it helps her to forget her own difficulties and to be more optimistic when she sees there are others who need more help.

  11. Incorporate technology resources
  12. As Jim V. writes “For me, a major challenge has been to overcome resistance to using electronic devices but now that I am freeing myself from that frustrating challenge, I am learning about many opportunities available.” Jim is now an avid iPad user since the font size can be easily increased and the user can switch to voice-over to read what is on the screen. He was able to receive technology training at a local center for the blind and partially sighted. He has discovered magnification software, apps for iPhone an iPad such as ZoomReader.

These are examples of how quality of life can continue even after vision loss. Life can still be enriching, engaging, and enterprising. It all depends on you.

List of Resources:

Braille Institute
Classes, training, on-site demonstrations of assistive-technology
www.brailleinstitute.org

Access Transportation Services
www.accessla.org

Computer Screen Readers
This is a free screen reader for the blind and visually impaired.
www.nvaccess.org

AI Squared
Computer software and other products that magnify and/or read the screen: Zoom Text, Zoom Reader for iPhones
www.aisquared.com

Support Group
Macular Degeneration Partnership
AMD.org

6/25/15

Dr. Limtiaco - living with vision lossLisa Limtiaco, OD
Dr. Richlin, OD & Associates
Beverly Hills, CA

Vision Recap Of Previous Articles of Interest

Besides the comments that we get, one of the best parts of putting together this blog is the wonderful group of guests who share their expertise and personal stories. I want to thank all of the eye care professionals and friends that have contributed to make this blog a success.
Vision Recap
Here is a quick vision recap of some of the articles we had in the past that you may have missed.

Jullia A. Rosdahl, MD, PhDCoffee and Glaucoma and Taking Control of Glaucoma

David Liao, MD, PhDWhat Are A Macular Pucker and Macular Hole?

Kooshay MalekBeing A Blind Artist

Dan Roberts15 Things Doctors Might Like Us To Know

Jennifer VilleneuveLiving With KC Isn’t Easy

Daniel D. Esmaili, MDPosterior Vitreous Detachment

Donna ColeLiving With Dry Age-Related Macular Degeneration

Pouya N. Dayani, MDDiabetes And The Potential For Diabetic Retinopathy

Robin Heinz BratslavskyAdjustments Can Help With Depression

Judith DelgadoDrugs to Treat Dry AMD and Inflammation

Kate StreitHadley’s Online Education for the Blind and Visually Impaired

Catherine Warren, RNCan Keratoconus Progression Be Predicted?

Richard H. Roe, MD, MHSUveitis Explained

Sumit (Sam) Garg, MDCataract Surgery and Keratoconus

Howard J. Kaplan, MDSpotlight Text – A New Way to Read

Gerry TrickleImagination and KC

In addition to the topics above, here are few more articles that cover a variety of vision issues:

If you have any topics that you would like to read about, please let us know in the comments section below.

6/23/15


Susan DeRemerSusan DeRemer, CFRE
Vice President of Development
Discovery Eye Foundation

Living Well With Low Vision Online Courses

As of May 5th, 10 new audio lessons offering tips and techniques for living well with low vision are now available as part of the newly-launched Low Vision Focus @ Hadley (LVF). These low vision online courses offer practical knowledge to make life easier.
low vision online courses
Low vision is defined by having significant difficulty seeing even after one’s vision is corrected with eyeglasses, contact lenses, surgery or medicine. Some typical symptoms of low vision include dimness, haziness, and having difficulty recognizing faces, reading labels and safely moving around. Low vision can make everyday tasks like reading the mail, shopping, cooking and paying the bills difficult. According to 2010 research by the National Eye Institute, the number of Americans with low vision will continue to grow dramatically, from 2.9 million in 2010, to 5 million in 2030, to 8.9 million in 2050, as our population ages. One out of every six older adults will experience age-related vision loss due to conditions such as macular degeneration, glaucoma or diabetes.

As the largest provider of distance education for people who are blind and visually impaired worldwide, The Hadley School for the Blind (www.hadley.edu) is building on its history and expertise with this new program. The LVF is designed to help those living with low vision maintain their independence by sharing practical ways to address daily living skills made difficult by vision loss. Most low vision assistance focuses on a device that is meant to correct the vision problem. The LVF, however, offers ways for older adults to educate themselves on their condition as well as learn adaptive techniques to continue the tasks of daily living. The LVF is unique in that it offers those living with low vision the opportunity to learn and take advantage of our resources from the comfort of their own homes, at a time that is convenient for them, with the benefit of one-on-one counseling and support, at no cost to them.

A newly-revised series of 10 audio lessons is the core component of the LVF. Each lesson is approximately 30 minutes long and is available on a CD that is mailed to the client. The CDs are free for the client to keep. When a new client comes to the LVF, he or she speaks with an intake coordinator to determine which lesson(s) best meet their needs based on their challenges with low vision. Clients will be limited in their requests to two lessons initially. Additional titles may be requested once the client has had the opportunity to listen to these initial lessons and determine future need. The audio lessons include:

Making the Kitchen User Friendly Getting Around in the House
Basic Tactile Marking Going Out with a Friend
Doing Simple Kitchen Tasks Keeping Prescriptions in Order
Low Vision Cooking Looking Your Best
Going Out for a Meal Simple Home Modifications

While the LVF is geared primarily toward seniors, adult children of seniors living with low vision are encouraged to take advantage of the resources offered by the LVF to aid their parents in the adjustment process. Additionally, while many of the people who are living with low vision are seniors, the program is open to any individual who is experiencing sight loss. Clients and professionals also are encouraged to utilize the programming of the LVF in either the development of new low vision support groups in local communities or to sustain existing support group networks.

In the future, Hadley will provide free, educational videos and webinars as part of the Low Vision Focus and the program will soon reference popular Hadley courses that may be of interest to individuals with low vision.

“We are so excited to offer the Low Vision Focus @ Hadley and enable this growing population to retain their independence and live with confidence,” says the dean of Educational Programs and Instruction and interim Director of the Low Vision Focus @ Hadley Doug Anzlovar.
For more information or to begin taking advantage of the LVF, please visit www.lowvisionfocus.org or call toll-free at 1-855-830-5355.

5/21/15


Kate Streit Hadley School online educationKate Streit
Media and Marketing Specialist
The Hadley School for the Blind

Traveling With Low Or No Vision

What Good is Sitting Alone in Your Room?

Traveling with low or no vision

There is a whole world out there to discover — regardless of whether you can see it all with your eyes. No one will tell you traveling with low or no vision does not present challenges, but there are precious few that cannot be overcome with planning, creativity and patience.
Traveling with low or no vision
A plethora of for-profit and nonprofit companies exist to help you navigate the complexities of traveling with a vision disability — from technology and websites, to travel agents and tour operators. And don’t overlook helpful — and free! — resources such as your friends and family, assistance pets and even complete strangers.

Travel Tools
Everyday tools become even more essential when you are traveling in unfamiliar surroundings. A mobility cane (consider a small travel version) will let you find your way more easily — and notify others of your vision issues. This is especially helpful for two reasons: Strangers are less likely to get in your way and more likely to help if you ask for it. In a recent DEF blog post (“Visual Aids and Techniques When Traveling”

Linda Becker, who has retinitis pigmentosa (RP) and travels primarily with her guide dog, is planning her next trip to Australia and New Zealand with Mind’s Eye Travel, a company that specializes in creating tours especially for people who are blind or visually impaired, as well as providing sighted guides. There are many such companies that will assist you with all facets of travel, from immigration documents to reservations to tour guides. Traveleyes offers discounts to sighted travelers in exchange for helping guide non-sighted travelers during group vacations around the world. DisabledTravelers.com is a good resource for companies that specialize in travel for people with accessibility issues. It includes reviews and recommendations on everything from airlines and cruises, to travel agents and hotels.

Plan, Prep, Pack
Ask any experienced low-vision traveler, and they will tell you planning, planning and more planning is the key to successful travel. Not only will it make your trip go more smoothly, it will give you peace of mind, as well as the ability to relax and enjoy yourself. The fewer surprises, the more confident and comfortable you will feel. And if something does goes awry, it is easier “go with the flow,” because everything else has been planned.

Right at the top of the list with planning is, well, making a list. Prepare a list of all the items you will need, then double it. That means if you wear contact lenses, pack at least one extra pair, as well as cleaning solutions. Same goes for glasses and sunglasses. Make sure you have plenty of the medications and other supplies you use on a day-to-day basis. Most seasoned travelers suggest you have multiples of all these stashed in different bags: your carry-on, your suitcase and a handbag of some kind that never leaves your side. This way, if one bag gets lost, you still have another one or two. Sample sizes may become your best friend!

Carolyn Hammett, an accomplished photographer and world traveler who has keratoconus (KC), advises: “Be prepared; having backups makes you more comfortable. Be ready to change contact lenses in public restroom if you need to. Have one of everything you need, vision-wise, with you at all times.” To learn more about Hammett and see what she packs for a two-week trip, see “Through a Lens with One Eye Blind,” a story from our recent e-newsletter focused on travel experiences and tips.

“Leave extra time, notify airlines or others in advance that you may need assistance, and don’t be afraid to ask for help,” says Adam Lawrence, who also has RP and travels regularly with his guide dog. (Read more about traveling with guide dogs in “Traveling Tails”, from an article in our recent e-newsletter.

Speaking of help, don’t forget the helper sitting next to you right now, whether it’s a spouse, a friend or a guide dog. Traveling alone can be vexing for people with full vision, so it’s natural for those with low vision to feel even more anxiety.

Dame Judi Dench, who has age-related macular degeneration (AMD), recently told Radio Times she no longer travels alone. “I need someone to say, ‘Look out, there’s a step here!’ or else I fall all over the place like a mad, drunk lady,” she said.

“Don’t travel by yourself the first time — go with someone you trust, and let them know how much help you want,” Hammett says. “I’ve gotten to the point where I tell my husband, ‘Don’t tell me anything until I screw up.’”

With planning, preparation and practice, you may get to a point where you feel comfortable traveling alone. You will only know your limitations if you try to stretch them.

“Just try,” Hammett says. “Do it once to find out if you can.”

Additional Resources

Access-Able Travel Source’s “Travel Tips for People Who are Blind or Visually Impaired”

Society for Accessible Travel & Hospitality

Transportation Security Administration’s “Passengers Who Are Blind or Have Low Vision”

5/14/15

LH1_RESCANLauren Hauptman
Lauren Hauptman INK

Famous People with Vision Loss – Part II

Here is part two of our look at famous people with vision loss. The focus this time is the creative minds of artists, actors and musicians.

Artists

Georgia O’Keeffe (1887-1986) – Best known for her paintings of enlarged flowers, New York skyscrapers, and New Mexico landscapes, she was recognized as the “Mother of American modernism”. In 1972, O’Keeffe’s eyesight was compromised by age-related macular degeneration (AMD), leading to the loss of central vision and leaving her with only peripheral vision. She stopped oil painting without assistance in 1972, but continued working in pencil and charcoal until 1984.

Claude Monet (1840-1926) – A French impressionist painter who had cataracts that blurred his vision and caused a severe loss of color perception. After complaining about his cataracts for ten years, he had cataract surgery in 1923. Those paintings before the surgery have more of a reddish tone, while those painted before his cataracts and after the surgery show more blue tones.

Edgar Degas (1834-1917) – A French artist known for his paintings, sculptures, prints, and drawings. He had a chronic and progressive retinal disease that made him sensitive to light and caused him to lose his central vision. Frustrated by these limitations he switched to oil pastels because less precision was needed. He finally resorted to sculpting to be able to utilize his sense of touch and feeling in order to continue to create art.

Actors

Johnny Depp (1963-) – Known for his many movie roles, Depp doesn’t let his vision loss stop his career. Besides correcting his blurred vision, the tinted lenses of the glasses he wears also help with Meares-Irien ‘visual stress’ syndrome, which causes dizziness, discomfort and eye pain. He is also nearly blind in his left eye.

Issac Lidsky (1979-) – A child actor known for his part in the Saved by the Bell: The New Class TV series, he was diagnosed with retinitis pigmentosa (RP) at 13 and was completely blind by 25 years of age. He changed the course of his career, becoming a lawyer. He was a law clerk for Justices Sandra Day O’Connor and Ruth Bader Ginsburg in 2008-09, making him the the first blind US Supreme Court clerk.

Jon Weller (1975-) – A TV actor who has performed on many shows, he is best known for his recurring role of toxicologist Henry Andrews on CSI: Crime Scene Investigation. He has been diagnosed with RP.

Dame Judith Dench (1934-) – A actress has had a long career in theater and film, receiving many awards including ten BAFTAs, six Olivier Awards, two Screen Actors Guild Awards, two Golden Globes, an Academy Award, and a Tony Award. She is well-known for the part of M in the James Bond series of films. In 2012 She announced that she has age-related macular degeneration (AMD), but has no intentions of slowing down. Scripts are now provided to her in a larger font.

Musicians

Ray Charles (1930-2004) – He was born with congenital glaucoma which resulted in blindness by the age of 7. This American singer, songwriter, musician and composer, received multiple Grammys, was inducted into the Rock and Roll Hall of Fame and a Kennedy Centers Honoree.

Stevie Wonder (1950-) – He is a singer-songwriter, multi-instrumentalist and record producer who signed with Motown Records at the age of 12. He has won 25 Grammys and received the Grammy Lifetime Achievement Award. He is blind due to retinopathy of prematurity due to excessive oxygen in his incubator when he was born.

Andrea Bocelli (1958-) – An Italian classical tenor, he was born with congenital glaucoma, but lost his vision at the age of 12 following a soccer accident in which he was hit in the head. He started playing piano when he was six, also learning the saxophone and flute. Bocelli has recorded fourteen solo studio albums, of both pop and classical music, three greatest hits albums, and nine complete operas, selling over 75 million records worldwide, making him one of the best-selling music artists of all time.

Ella Fitzgerald (1917-1996) – An American jazz singer often referred to as the First Lady of Song. She also appeared on TV and in movies. She won 14 Grammy Awards, National Medal of Arts and the Presidential Medal of Freedom. She was diagnosed later in life with diabetic retinopathy due to her advanced diabetes, which also cost her both legs.

Do you know of any creative famous people You could add to this list? Please share them below in the comments.

4/30/15

Susan DeRemerSusan DeRemer, CFRE
Vice President of Development
Discovery Eye Foundation

Famous People with Vision Loss – Part I

With all the recent news about Rosanne Barr’s vision loss due to age-related macular degeneration (AMD) and glaucoma, I thought it would be interesting to see other famous people with vision loss who didn’t let it stop their impact on the world around them. Today’s post will focus on writers, politicians, business and military leaders, scientists. Thursday we will explore artists, actors and musicians.

Authors

Harper Lee (1926-) – Best known for her 1960 Pulitzer Prize winning book To Kill a Mockingbird, she has been diagnosed with AMD. Her second novel, Go Set a Watchman, which was actually written before To Kill a Mockingbird, will be published this July.

John Milton (1608-1674) – English poet who wrote the poem Paradise Lost, among others, and became blind at the age of 43.

Alice Walker (1944-) – American author and activist who wrote The Color Purple which won the Pulitzer Prize and the National Book Award in 1983. She was blinded in one eye as a child when shot with a BB gun.

Joseph Pulitzer (1847-1911) – American newspaper publisher who established the prestigious journalism award, the Pulitzer Prize. He became blind at the age of 42 due to a retinal detachment.

James Thurber (1894-1961) – American humorist who switched his attention from sports to writing when his brother shot him in the eye with an arrow while recreating the legend of William Tell shooting the apple off his son’s head.

James Joyce (1882-1941) – Irish novelist and poet who had numerous eye surgeries for various conditions starting with iritis.

Stephen King (1947-) – American author of contemporary horror, supernatural fiction, suspense, science fiction, and fantasy. He has been diagnosed with AMD.

Leaders

Horatio Nelson (1758-1805) – British naval admiral lost an eye as a young seaman. He was said to have used this to his advantage by raising his telescope to his blind and then claim not to see the flags of surrender being raised by enemy ships.

Thomas Gore (1870-1949) – Blinded as a child, he became the first senator from Oklahoma and the first blind member of the US Senate.

Steve Wynn (1942-) – A well-known business leader having helped build up Las Vegas, and the owner of The Wynn and The Encore resorts, he was diagnosed with retinitis pigmentosa in 1971 and declared legally blind in 2010.

David Alexander Paterson (1954-) – He was the first African American Governor of New York and the second legally blind governor of any state, after Bob Riley of Arkansas. Paterson became blind at the age of three months when an ear infection spread to his optic nerve.

Willie Brown (1934-) – He spent over 30 years in the California State Assembly and served as the first African American Mayor of San Francisco for eight years. He has retinitis pigmentosa.

Hellen Keller (1880-1968) – She was an American activist, lecturer and author. She was the first deaf/blind person to graduate from college. At the age of 19 months she came down with infection that left her deaf and blind. She inspired the Lions Clubs International to become “knight of the blind,” leading them to focus their community service efforts toward vision-related causes.

Science & Medicine

Dr. Jacob Bolotin (1888-1961) – Was the first congenitally blind person to receive a medical license. This Chicago physician’s specialties were diseases of the heart and lungs.

John Glenn (1921-) – He was the first man to orbit the earth in 1963 on the Friendship 7 mission. He suffers from glaucoma.

Joseph Plateau (1801-1883) – Belgian physicist who invented an early stroboscopic device, the phenakistiscope, in 1836 that allowed still images to create an animated effect. It eventually led to the development of cinema. He performed an experiment in which he gazed directly into the sun for 25 seconds, leading to his eventual blindness.

Join us next Tuesday for part two.

4/28/15

Susan DeRemerSusan DeRemer, CFRE
Vice President of Development
Discovery Eye Foundation

Your Comprehensive Eye Exam

Your Comprehensive Eye Exam

Being able to see clearly is important to all of us. But it is also something we have a tendency to take for granted until we notice changes in our vision. The point of the yearly comprehensive exam is to monitor your eyes before any problems arise, and address any concerns that could affect your vision later. Here is what to expect at your next comprehensive eye exam.

An eye exam involves an external examination of your eyes followed by a series of tests designed to evaluate your vision and check for eye diseases. Each test evaluates a different aspect of your vision and includes specific tests for visual acuity, pupil function, muscle function, visual fields, eye pressure and viewing the back of the eye through a dilated pupil.
cross section of eye - eye exam
External Exam
The external examination consists of inspecting the eyelids, surrounding tissues and the eyeball including the sclera (white part of the eye), iris and cornea.

Visual Acuity & Fields
Visual acuity is your eye’s ability to detect fine details and see an in-focus image at a certain distance. A Snellen chart and a phoropter are used. The standard definition of normal visual acuity is 20/20. The term 20/20 comes from even sized objects that can be seen by a “person of normal vision” atvisual acuity eye exam the specified distance. For example, if a person can see at a distance of 20 feet an object that normally can be seen at 20 feet, then they have 20/20 vision. If they can see at 20 feet what a normal person can see at 40 feet, then they have 20/40 vision. For the visual acuity test each eye is tested separately to gauge your side or peripheral vision.

Pupil Functionpupil function eye exam
An examination of the pupil begins with inspecting your pupils for equal size, regular shape, reaction to light, and direct and consensual reaction (meaning the pupil of one eye constricts when the other eye is exposed to light).

Eye Muscle Function
Eye movement is assessed two ways. First by having you move your eye quickly to a target at the far right, left, top and bottom. Then by slow tracking which uses the ‘follow my finger’ test, which tests all the muscles that move your eye.

tonometer eye examEye Pressure Measurement
Intraocular pressure, or IOP, is measured using a tonometer to determine the fluid pressure inside your eye. This test provides information regarding your potential for glaucoma.

Viewing the Back of the Eyedilated eye - eye exam
Increasing the size of your pupil with eye drops (known as dilating your eyes) allows the doctor to have a larger view of the back of your eye, including the retina, as demonstrated by this diagram. This is very important for diagnosis and tracking of macular degeneration and diabetic retinopathy.

Eye Structureslit lamp eye exam
A special, high-powered microscope, called a slit-lamp, is used to view the structures of your eye clearly and in detail, enabling early diagnosis of a variety of eye conditions such as cataracts, presbyopia and corneal injury.

Taking care of your eyes, especially as you become older, is very important. Changes in vision may be gradual, or fast, but in both cases, early diagnosis is key to successful treatment and retaining your vision. It is suggested that individuals 40 and over have a comprehensive eye exam every one to two years. Exceptions would be if you have diabetes, in which case you should see your eye doctor yearly; or there is a family history of eye diseases such as glaucoma, macular degeneration, or corneal diseases, which may require more frequent visits to your eye doctor. If you have any degree of sudden vision loss, eye pain, or significant irritation, contact your eye doctor immediately.

4/23/15

Susan DeRemerSusan DeRemer, CFRE
Vice President of Development
Discovery Eye Foundation

Driving and Age-Related Macular Degeneration

Driving and Age-Related Macular Degeneration

The issue of driving and age-related macular degeneration is a particularly sensitive one for seniors losing their vision. Driving means independence and most people want to hold on to their cars as long as possible. When is it time to stop?
Driving and Age-related Macular Degeneration
A research survey by the Massachusetts Institute of Technology (MIT) Age-Lab and The Hartford Financial Services Group involved 3,824 drivers over age 50, asking them how and why they limited their driving.

The study found that two-thirds of the drivers self-regulated their activities in the car, restricting their driving for certain condition. Time of day was a common factor, with some people choosing to stay home at night or dusk. Bad weather conditions and heavy traffic were other conditions. Over time, drivers developed conscious strategies to compensate for failing vision, slower reflexes and stiffer joints.

Statistically, older drivers are actually very safe drivers, although over age 75, the accident rate per mile increases. The study found that health and medical conditions contributed far more to driving restrictions than age alone.

About ten percent of the nation’s drivers are over 65. However, by 2030, when one in five Americans are over age 65, this percentage will skyrocket. Consider that 23-40% of people over age 65 have macular degeneration – that ís a lot of drivers with a potential visual impairment.

Making the Decision

If your macular degeneration is causing a problem when you drive, you are most likely aware of it. Or, perhaps a friend or family member has pointed it out to you. Does this mean you should immediately stop driving? Not necessarily.

What you should do immediately is ask yourself some critical questions. How are you functioning when you drive during the day? What about dusk, dawn and cloudy days? Bright sunlight? At night?

Here are six important questions:

  1. Do you have difficulties reading clearly and rapidly all the instruments on a carís dashboard?
  2. Do you have difficulties reading road signs, or if you are currently driving, do you notice and understand the signs in time to react to them with comfort?
  3. Do other cars on the road appear to “pop” into and out of your field of vision unexpectedly?
  4. While on the road, do you drive well below the speed limit and slower than most cars around you?
  5. Do you have difficulties positioning yourself on the road, with respect to other cars, lane markers, curves, sidewalks, parking spaces, etc.?
  6. Do you find yourself feeling confused and/or disoriented on the road?

If you answered yes to any of the above questions, you may want to suspend your driving until you consult a specialist. If your answers indicate that you may have a problem under certain conditions (i.e., dim light or night) you may want to suspend your driving under those conditions until you consult a specialist further.

This questionnaire is from an excellent book, “Driving With Confidence, A Practical Guide to Driving With Low Vision” by Eli Peli and Doron Peli. Dr. Eli Peli is a Senior Scientist at the Schepens Eye Research Institute and Professor of Ophthalmology at Harvard Medical School. Their book contains a practical program to help you maximize your chances of retaining your driving privileges. It also provides a detailed description of driving vision regulations in every state as does the AAA website.

Other Useful Resources

AARP Driver Safety Program – Largest classroom driver refresher course specially designed for motorists age 50 and older. It is intended to help older drivers improve their skills while teaching them to avoid accidents and traffic violations.

AAA Safety Foundation for Traffic – Tips on driving and resources for other transportation options.

Summary

There are many ways to stay safe and maintain your independence. Just be attentive to your own abilities and find out all you can about your options.

4/21/15


Judi Delgado - age-related macular degenerationJudith Delgado
Executive Director
Macular Degeneration Partnership
A program of Discovery Eye Foundation

Do I Need Vision Insurance?

With the rising costs of health insurance, many people are looking for ways to reduce their costs. Since not all insurance packages include vision insurance, many people wonder, do I need vision insurance?
vision insurance

Standard Vision Insurance

Vision insurance is a type of health insurance that entitles you to specific eye care benefits such as routine eye exams and other procedures, as well as a specified dollar mount or discount for the purchase of eyeglasses and contact lenses. It only supplements regular health insurance and is designed to help reduce your costs for routine preventative eye care and eyewear.

You can get vision insurance as part of a group, such as your employer, an association, etc., through a government program such as Medicare or Medicaid, or as an individual. It is often a benefit linked to your regular HMO (health maintenance organization) or PPO (preferred provider organization) health insurance.

There are two primary vision insurance plans available:

  • Vision Benefits Package – provides free eye care services and eyewear within a fixed dollar amount for which you pay an annual premium or membership fee and a small co-pay. It may also include a deductible.
  • Discount Vision Plan – provides eye care and eyewear at a discounted rate after you pay an annual premium or membership fee.

Both insurance plans generally include:

  • Annual eye exams
  • Eyeglass frames (usually once every 24 months)
  • Eyeglass lenses (usually once every 24 months)
  • Contact lenses (usually once every 24 months)
  • Discounted rates for LASIK and PRK

Here is where you can check for a list of some vision insurance providers.

Medicare and Medicaid

Different kinds of vision care are included in the US government programs, Medicare and Medicaid. These programs are for qualifying American age 65 and older, individuals with specific disabilities and people with low income.

The Types of Medicare For Vision:

    • Medicare Part A (Hospital Insurance) –Medical eye problems that require a hospital emergency room attention, but routine eye exams are NOT covered.
    • Medicare Part B (Medical Insurance) – Visits to an eye doctor that are related to an eye disease, but routine eye exams are NOT covered.
    • Medicare Part D (Prescription Drug Coverage) – Will help pay for prescription medications for eye diseases.

If you have Medicare Parts A & B you are generally eligible for the following vision coverage, however, there is a deductible before Medicare will start to pay, at which point you will still be paying a percentage of the remaining costs.

  • Cataract surgery – covers many of the cost including a standard intraocular lens (IOL). If you chose a premium IOL to correct your eyesight and reduce your need for glasses, you must pay for this added cost out-of-pocket.
  • Eyewear after cataract surgery – one pair of standard eyeglasses OR contact lenses.
  • Glaucoma screening – an annual screening for people at high risk for glaucoma, including people with diabetes or a family history, and African-Americans whom are 50 or older.
  • Ocular prostheses – costs related to the replacement and maintenance of an artificial eye.

There is also Medicare Supplement Insurance (Medigap) which is sold by private insurance companies to supplement only Medicare Parts A & B. It is intended to cover your share of the costs of Medicare-covered services including coinsurance, co-payments and deductibles. For more details about Medicare plans and coverage check their website or call 800-633-4227.

Medicaid is the US health program that gives medical benefits to low-income people who may have no or inadequate medical insurance. A person eligible for Medicaid may be asked to make a co-payment at the time medical service is provided. Vision benefits for children under the age of 21 include eye exams, eyeglass frames and lenses. Each state determines how often these services are provided and some states offer similar vision services to adults. To learn more about Medicaid eligibility requirements and vision benefits call your state’s Medicaid agency or visit their website.
vision dial - vision insurance

Defined Contribution Health Plans

A way to lower your vison care costs is to take part in a defined contribution health plan (DCHP). You are given a menu of health care benefits to choose from where a portion of the fees you receive for health coverage come from money that is deducted from our paycheck before federal, state and social security taxes are calculated. Four types of DCHP are:

Cafeteria Plans – your employer takes a portion of your salary and deposits it into a non-taxable account for health care spending. The amount taken depends on the number and costs of the benefits you select.

Flexible Spending Accounts (FSA) – your employer takes a predetermined portion of your pre-tax salary and deposits it into health care account for you to pay medical expenses. But generally preventative care such as routine eye exams and are not reimbursable. Nor are eyeglasses and contact lenses reimbursable. You would need to verify with your employer. If you do not use all the money at the end of a 12 month period, the money goes back to your employer.

Health Reimbursement Arrangement (HRA) – this is similar to an FSA except you can use it for preventative care like eye exams and you do not lose the money if it isn’t spent within a certain time period as it can be carried from year to year.

Health Savings Account (HSA) – it can be employer-sponsored of you can set up one independently; however you must purchase a high-deductible health insurance plan to open an HSA and you cannot exceed the annual deductible of your health insurance plan. You cannot be enrolled in Medicare of be a depended on someone else’s tax return. You can use it for preventive care such as eye exams. You can learn more about HSAs by visiting the US Treasury’s website.

There are a variety of options when it comes to vision insurance. You just need to determine your needs and ask providers the correct questions.

4/14/15


Susan DeRemerSusan DeRemer, CFRE
Vice President of Development
Discovery Eye Foundation