Our Greatest Fear

The most intimate moment in the life of a parent happens as darkness overcomes the day and you tell your children a bedtime story, tuck them into bed, and kiss them goodnight.  For years, our son Tom needed a night light to eliminate his fear of the dark and allow him to sleep.

The other day I had the privilege of referring our friend Suzanne Thornton to Dr. Sameh Mosaed, a researcher and practicing physician at the Gavin Herbert Eye Institute (GHEI) with a special interest in glaucoma. Over lunch our friend Suzanne candidly talked about her overwhelming sense of fear at her loss of vision, the recent falls she had taken, and the steps up or down she couldn’t see.  Thankfully Dr. Mosaed is very confident in Suzanne’s prognosis based on the cutting edge improvement in surgical outcomes for glaucoma due to her research at GHEI.

For 8 years I served as a member of the Academy of Ophthalmology’s Foundation Board.  In that time we conducted a number of studies in all areas of vision preservation.  The one that I believe was most meaningful occurred when we asked thousands of people to express what frightened them most in life.  Frankly, I was really surprised at the results of the study.  I was sure that people would say maybe stage four cancer, or ALS, or some other terminal disease would be the thing that would frighten them the most.  I would have imagined that they might talk about the loss of a loved one or even the fear of a natural disaster.  The results of the study were very clear.  62% of all the participants said that the loss of vision was the single most frightening possibility they would ever have to face.

The Discovery Eye Foundation is committed to relieving people of their greatest fear by supporting the research that someday may eliminate most forms of blindness.  We remain grateful for all of your support as we strive to overcome people’s greatest fear, the loss of sight

 

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

I Can Only Imagine

I can only imagine my wife’s beautiful face.  Oh sure, I’ve touched it and kissed it many times.  I’ve felt the lines with the tips of my fingers, tracing our lives together, and I’ve heard her smile.  I understand that’s not really seeing it.  It’s not seeing her eyes as they sparkle with something funny I said; or, when she looks at me with love reserved only for those who are truly in love.

She’s often tried to explain the flash and colors of a sunset and the cotton softness of clouds as they drift across the sky.  And, what about a rainbow made up of all the colors that somehow promise all of us that things in the world will get better. 

How amazing it would be to see my daughter Blythe skiing her favorite Colorado Mountain trail or my son Tom riding a California wave, both so secure and happy enjoying the sports they love. 

There is so much more I wish I could see, but it’s not going to happen because I am blind.  I am left with only imagining what it’s like to have the gift of sight.

I can only empathize with how a person feels when their vision is threatened by glaucoma or diabetic retinopathy, retinitis pigmentosa, and the most devastating of all, macular degeneration.

At the Discovery Eye Foundation (DEF) our researchers are working every day to overcome the loss of vision and preserve your ability to treasure all the beauty that surrounds you.  I’ve heard it said that the eyes are the windows to the soul.  I don’t know if that’s true, but I am sure that they are the single most important sense in the group of five, and that saving vision is a cause that must be supported.

DEF is committed to that mission, and with your help, answers to all forms of eye disease will be discovered.  It’s up to all of us to support the research that’s bringing us ever closer to those solutions.

If you want to help, please click the button below or download donation form to donate by mail, click here: DEF donation form

DonateNow 

 

 

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

Beware of Costume Contacts

Costume Contact Lenses such as cat eyes or zombie may make your Halloween costume a bit more frightful although wearing those lenses without a prescription can be more terrifying, as it could result in vision loss or even blindness.

You can buy contact lenses, including decorative contact lenses, from your eye doctor or on the Internet.  It’s very important that you only buy contact lenses from a company that sells FDA-cleared or approved contact lenses and requires you to provide a prescription.  Even if you don’t wear corrective lenses you still need to get fitted properly.

Remember — Buying contact lenses without a prescription is dangerous!

Right now there are a lot of products that you can buy without a prescription but they may not be safe or legal.

You should NEVER buy lenses from:

  • street vendors
  • salons or beauty supply stores
  • boutiques
  • flea markets
  • novelty stores
  • Halloween stores
  • convenience stores
  • beach shops
  • internet sites that do not require a prescription

Know the Risks –

Wearing costume contact lenses can be risky, just like the contact lenses that correct your vision. Wearing any kind of contact lenses, including costume lenses, can cause serious damage to your eyes if the lenses are obtained without a prescription or not used correctly.

These risks include:

  • A cut or scratch on the top layer of your eyeball (Corneal Abrasion)
  • Allergic reactions like itchy, watery red eyes
  • Decreased vision
  • Infection
  • Blindness

Signs of possible eye infection:

  • Redness
  • Pain in the eye(s) that doesn’t go away after a short period of time
  • Decreased vision

If you have any of these signs, you need to see a licensed eye doctor (optometrist or ophthalmologist) right away!  An eye infection could become serious and cause you to become blind if it is not treated.

This Halloween season DEF wants to remind you of the importance of eye safety and to make sure to take the proper steps in ensuring the proper contact lenses. 

September is Healthy Aging Month

 

Today, people are living longer than ever before so it’s important to be proactive and take responsibility for your health as you age.  

Like any other organ in your body, your eyes do not stay the same as you get older. Vision changes are normal with age but vision loss and blindness are not.  Older adults are at higher risk for certain eye diseases and conditions, including age-related macular degeneration, cataract, diabetic retinopathy, glaucoma, dry eye, and low vision.  To continue to enjoy healthy vision as you advance in years, it’s important to have a comprehensive dilated eye examination with an ophthalmologist or optometrist on a regular basis.

Here are some other tips to maintain healthy vision now and as you age:

  • Eat a healthy, balanced diet. Fruits and vegetables can help keep your eyes healthy. Visit our website for healthy eye recipes, click here Eye Cook.

 

 

  • Maintain a healthy weight. Being overweight increases your risk for diabetes. By exercising regularly, you can help keep your body healthy and prevent vision loss. 

 

 

 

  • Don’t smoke. Smoking increases your risk for age-related macular degeneration, cataract, and other eye diseases and conditions that can damage the optic nerve.

 

 

 

  • Wear protective eyewear when outdoors. Protecting your eyes from the sun’s ultraviolet rays when you are outdoors is vital for your eye health.  Wearing sunglasses that block 99 to 100 percent of both UV-A and UV-B radiation.

 

 

  • Know your family history.  Talk to your family members about their eye health history. It’s important to know if anyone has been diagnosed with a disease or condition since many are hereditary, such as glaucoma, macular degeneration, and diabetes . This will help determine if you are at higher risk for developing an eye disease or condition.

 

  • Consider a multivitamin. Vitamins C, E and the mineral zinc have been shown to promote eye health.  Vitamins with Lutein and Zeaxanthin have been known to help patients with moderate to severe age-related macular degeneration.

 

  • Give your eyes a rest.  If you spend a lot of time at the computer or focusing at any one distance, you sometimes forget to blink, resulting in dryness and eye fatigue.  Every 20 minutes, look away about 20 feet in front of you for 20 seconds. This can help reduce eyestrain. Consider using a lubricant eye drop during long periods of intense eye use and rest your eyes for 5 minutes.

 

You can’t stop time, but you can take care of your eyes so that they remain healthy as you age. Having a healthy vision can be possible at any age! 

A New Commitment to Vision

Meet Tom Sullivan – DEF’s Ambassador of Vision

Over the last 40 years, I’ve been committed to working on behalf of blind children and their families.  My involvement has spanned the entire gamut of participation – from direct involvement in the classroom and counseling parents to hosting organized 10K races and celebrity golf tournaments that carried my name.  In that time, my wife and I raised just over $8 million thanks to the generosity of so many people.  Though my commitment to this cause has not changed, I’ve chosen to take on a new challenge that has in every way re-energized my passion. 

I’ve recently become the Ambassador of Vision for the Discovery Eye Foundation (DEF), a remarkable organization that funds cutting edge research that I believe someday will eliminate many forms of blindness.  The principle reason for my enthusiastic commitment is largely due to the fact that DEF directly funds researchers and avoids institutional restrictions.

As of this blog, DEF is engaged in ongoing efforts to understand 5 main eye diseases – Retinitis Pigmentosa, Macular Degeneration, Keratoconus, Diabetic Retinopathy, and Glaucoma.  I can honestly tell you that breakthroughs are not only on the horizon, but in many cases they are imminent.  Over the weeks and months I’ll be telling you much more, specifically about our individual research projects.  

Any help you may choose to give on behalf of people struggling with vision loss will be deeply appreciated. I look forward to having many of you join my fight for sight. Your help can make a difference! Click here to donate.

 

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

 

 

A Second Vision

Kristin McDonald

For the last few years Kristin McDonald, a former actress and television spokeswoman, has been applying her make-up without the aid of her eyes due to retinitis pigmentosa, a condition that reduces a person’s peripheral vision until all that is left is a pinpoint of sight.

Today, she is in a first stage study that is offering her and others hope that the injection of stem cells might be the mechanism that could slow, and maybe even halt the effects of this horrible disease. Discovery Eye Foundation helped support many of the preliminary translational studies necessary to bring the clinical trial to the FDA and get this exciting, novel approach to the patients.

I am Tom Sullivan, Ambassador of Vision for the Discovery Eye Foundation, and I was rocked when my phone rang recently and I heard the sound of my friend Kristin crying.

“What’s the matter?” I asked with real concern.

Her tears were quickly replaced by laughter, joyous laughter.

“It might be working,” she said, “I mean, the cells just might be having an impact.”

“Meaning your feeling change in your vision?” I asked. 

“Tom,” she went on, “you won’t believe it. This morning when I was getting dressed and putting on my make-up, I saw my mascara in the mirror. Listen, I am not trying to tell you I can see, but since the cells were injected, I can focus on a light and even begin to notice shadows.”

“And, now,” she laughed again, “maybe I can put my mascara on straight!”

Kristin has no illusions about how far the injection of cells will take her; but, she is encouraged, as are many of the other patients who are part of Dr. Henry Klassen’s clinical study helped by DEF’s early stage funding.  Maybe the old phrase really does apply – you probably know the one I mean – “hope springs eternal in the human breast.” That goes for the researchers, the patients, and all of us who treasure the gift of sight.

To read more about Kristin McDonald, visit her website at secondvision.net

 

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

Chlorine & Your Eyes

Summer time is officially here and everyone enjoys a dip in a nice, cool pool during the summer months.  While swimming is a great form of exercise and a relaxing way to cool down, the water can be hard on your eyes.

What Chlorine Does to Your Eyes –

Yes chlorine can make your eyes red!  But the real dangers in pool water aren’t just a result of your eyes coming in contact with the chemical. The redness and discomfort that sometimes accompany swimming can be caused by bacteria that linger in the water. When submerged in chlorine-treated water, your eyes lose the tear film that protects against infection.  Even though the purpose of chlorine in pools is to reduce the amount of harmful bugs, some contaminants are resistant to the chlorine that is used. This means the health of your eyes can be compromised with infections caused by bugs still lingering in the water.  

This can result in these three common eye issues:

  • Pink eye or conjunctivitis – This is one of the most common eye infections swimmers can get, as it can be either viral or bacterial and spreads quickly and easily through the water.
  • Red, irritated eyes –  This is a result of your eyes becoming dehydrated due to the chlorine and the removal of your tear film. Sometimes you may also experience blurriness and distorted vision, this is usually only temporary.
  • Acanthamoebic keratitis – This is a severe eye infection that is caused by amoeba in the water becoming trapped between the cornea and the contact lens. It can begin to live there, which can result in ulcers on your cornea and permanent damage to your vision.

 

Swimming with Contact Lenses  

Wearing contact lenses in any type of water—including a pool, hot tub, ocean or lake—puts you at higher risk for a corneal infection. Bacteria and other microbes can grow on the lenses even after just one swim. Because contact lenses sit on your eyes for an extended period of time, your eyes are then continuously exposed to chemicals, bacteria, fungi or parasites after you swim. That can lead to a painful infection, corneal damage, and even loss of vision.

To avoid any kind of infection, remove contacts altogether when swimming or use swim goggles. You can get prescription swimming goggles to help keep your vision clear and eyes healthy in the pool. Talk with your eye care provider for more information about the different kinds of swim goggles available.

If you have any of these eye infection symptoms are increasing one hour or longer after swimming, see your eye doctor right away.

Redness
Pain
Tearing
Being very sensitive to light
Blurry vision
Sensation of having something in your eye
Discharge from your eye
Eye swelling
 

With all of these risks to your eyes from chlorine, swimming might seem a bit scarier than before. However, there is no need to panic!  By taking a few safety measures, you can protect your eyes and still enjoy your time in the pool.

 

  • Wear Goggles – Wear a pair of swim goggles every time you swim. Goggles keep pool chemicals out of your eyes.

 

 

 

 

  • Wash Your Eyes – Immediately after swimming, splash your closed eyes with fresh tap water.  This washes chlorine and other chemicals off your eyelids and eyelashes.

 

 

 

  • Use Eye Drops – Use over-the-counter lubricating eye drops before and after swimming to keep the tear film balanced and eyes comfortable.

 

 

  • or Use Gel Tears – If you have dry eye, thicker artificial tears called gel tears will help protect your tear film, use these drops before putting on your goggles.

 

 

  • Stay Hydrated – Don’t forget to drink plenty of water. Staying well hydrated is an important part of keeping your eyes moist and comfortable.

 

 

Don’t miss out on the fun this summer! By taking these easy steps whenever you decide to take a dive, you can have peace of mind that your eyes and your vision are protected.

 

 

Is That a Stye or a Chalazion On My Eye?

How We Get Them & How We Get Rid Of Them

Do you have something that looks like a pimple on the outside or inside your eyelid? Is it terribly uncomfortable and unsightly?  You either have a stye or a chalazion on your eye.  

 

Chalazion is a non-infected swelling of the lid caused by a blocked lipid gland. Lipid from the blocked gland leaks into the eye lid tissue causing an inflammation which eventually clears the irritating lipid. This can take 2 to 4 weeks or more.

 

Styes are caused by bacteria from your skin that gets into and irritates the oil glands in the eyelids. These bacteria, which normally exist harmlessly on the skin of the eye, can sometimes get trapped along with dead skin cells on the edge of the eyelid. The result is a swollen, red, and painful bump that can develop over the course of a few days.

While most styes or chalazions are harmless and will heal on their own in about a week or two, they can still be thoroughly unpleasant. Fortunately, there are a few remedies that may help you get rid of a stye or chalazion a little faster — or at least reduce some of the discomfort and swelling that often accompany them.

Keep Your Eyelids Clean

  • The first thing you should do if you develop a stye is cleanse your eyelids. You can use diluted tear-free baby shampoo on a cotton ball, washcloth, or makeup remover pad. Then rinse your eyelids with warm water and gently pat them dry.
  • Also, be sure to wash your hands before and after touching the stye, and don’t share your towels or washcloths with others.
  • Pre-moistened eyelid cleansing pads are another option. You can find these non-prescription items in most drugstores.
  • It’s wise to stop wearing eye makeup temporarily when you have a stye or chalazion, because covering it up can delay the healing process. Also, discard old makeup or applicators that could be contaminated.
  • And if you need vision correction, wear glasses rather than contact lenses until your stye heals.

Apply Warm, Moist Compresses

  • You can encourage a stye or chalazion to heal faster by applying hot compresses for 10 to 15 minutes, three or four times a day.
  • Some people use teabags for this purpose, but a basic clean washcloth dipped in warm (not hot) water will do the trick and is easy to prepare. Wring the cloth so it’s not dripping, then place it over your closed eyes.
  • The goal of this therapy is to bring the stye or chalazionto a head, like you see on a pimple. But whatever you do, don’t get anxious and try to pop it! The warmth from the compress often will allow it to open, drain and heal on its own without causing trauma to the eyelid or possibly spreading an infection by squeezing it.

Ease the Discomfort

  • Over-the-counter painkillers like acetaminophen and ibuprofen probably won’t do much to speed healing, but these medications may ease discomfort if a stye is particularly bothersome.
  • Your eye doctor can also address pain associated with styes or chalazions. Sometimes, your eye doctor may choose to surgically open a large stye to relieve discomfort and prevent a serious infection.

Always consult a medical professional if you have concerns, pain, or if an external stye that does not clear up within one week or an internal one (on the inside of the eyelid) in three weeks.

National Glaucoma Awareness Month

January is National Glaucoma Awareness Month –                                    An important time to raise awareness for this sight-robbing disease.

Glaucoma is an age-related disease and is the second leading cause of irreversible blindness in people over 40. Glaucoma is 6 to 8 times more common in African Americans than Caucasians. If you have a close blood relative with glaucoma, it raises your risk of getting it.

Glaucoma is the sneak thief of sight, since there are no symptoms and once vision is lost, it’s permanent. As much as 40% of vision can be lost without a person noticing. 

More than 3 million people in the United States and over 60 million people worldwide, have glaucoma. Experts estimate that half of them don’t know they have it. Combined with our aging population, we can see an epidemic of blindness looming if we don’t raise awareness about the importance of regular eye examinations to preserve vision.

How to Help Raise Awareness

In the United States, approximately 120,000 are blind from glaucoma. Here are three ways you can help raise awareness:

talk to your family about glaucoma awareness
Talk to your friends and family
  • Talk to friends and family about glaucoma. Do not keep it a secret. Let your family members know.
  • Get involved in your community, educational seminars, support groups, and more.

 

What is Glaucoma?

Glaucoma is a disease that causes damage to the major nerve of the eye called the opdevelopment of glaucomatic nerve, a part of the central nervous system that carries visual information from the eye to the brain.

The eye experiences a gradual increase of intraocular pressure (IOP) due to an imbalance of the fluid produced in the eye and the amount of fluid drained. Over time, elevated IOP can cause vision loss. The most common form of glaucoma is primary open angle glaucoma which affects about 3 million Americans. However, there are other types including narrow angle, congenital, normal tension, and secondary glaucoma.

There is no cure for glaucoma—yet. However, medication or surgery can slow or prevent further vision loss. The appropriate treatment depends upon the type of glaucoma among other factors. Early detection is vital to stopping the progress of the disease.

 

Risk Factors

How do you know if you are at risk for glaucoma? Those at higher risk include people of African, Asian, and Hispanic descent. Other high-risk groups include: people over 60, family members of those already diagnosed, diabetics, and people who are severely nearsighted.

Regular eye exams are especially important for those at higher risk for glaucoma, and may help to prevent unnecessary vision loss. In the most common form, there are virtually no symptoms. Vision loss begins with peripheral or side vision, so if you have glaucoma, you may not notice anything until significant vision is lost.

 

Getting your eyes checked by an ophthalmologist regularly will be the best way to detect glaucoma or any other eye disease early.

 

Low Vision and Smart Phones

Many of us just use the basics on our smart phone and never personalize them for our own needs. It is worth taking the time to adjust our phones to take advantage of the special services that may be available and unused. Making a phone call or sending a text message with a smart phone can be challenging, however, with simple modifications, keeping in touch with the world can become a snap. Getting comfortable with your smart phone will make staying in touch with your loved ones very easy.

If you’ve used a smartphone these past several years you already know that a great deal of voice command capabilities come built in to most current models, so you can verbally instruct your smartphone to “Call my wife,” or “Read my last text message.” The smart phone has been a wonderful addition to the world of technology; with built-in accessibility features these phones have provided individuals with visual impairments the ability to carry out several activities that have been difficult without the use of a magnifier or other assistive device.

One way to make it easier to see the names in your contact list is to magnify the text on the screen. After tapping the “SETTINGS” icon on your home screen, you will find “ACCESSIBILITY” features under General Settings or Personal Set-up. Accessibility features can be used to visually enhance the use of your smart phone. Adjusting the size of the text, under the “LARGER TEXT” selection can magnify the print in your contact list so that names are easier to see. Simply sliding the prompt on the larger text screen to the right will enlarge print throughout your smart phone: phone contacts, text messages and emails.

Despite enlarging text, you still may find it difficult to see contacts on your screen. That is where tools called “VOICE ASSISTANTS” or “TEXT-TO-SPEECH” can make it less stressful for you. After you have enabled the settings, you can engage them by speaking into your unit’s microphone. On most phones, this feature can be turned on by holding down the home button. Once you hear a beep, you say the name of a person or business. You can access your contact list by asking your voice assistant to call people from your contact list or by reciting the phone number you are trying to connect to.

Tips for a Better Low-Vision Phone Experience

Whether you use some or all of the low-vision phone features described in this article, there are still more things you can do to improve phone usability that don’t require a trip to Accessibility settings. Some involve choosing hardware and software, others are simple, and cost nothing.

  • Right-size your phone: How much magnification you need depends on your vision, of course, but also on the size of the phone you choose. If you need a high level of zoom, or larger text, you might want to pick a phone with a larger screen, which will allow more of the screen contents to remain visible when you zoom or crank up the font size. You’ll find Android and iOS phones with screens up to 5.7 inches. Tablets are bigger. The challenge of a large phone for some low-vision users is the need to hold the device close to your eyes to view it. Before you choose a phone, be sure to handle and use the model you’re planning to buy.

  • High-contrast wallpaper: You can change the background of your Home screen by turning any photo into wallpaper, or picking from wallpapers already available on the device. Using a solid color, rather than a busy photo that obscures your app icons and the text on the Home screen can make it much easier to locate text and icons. If a solid background seems boring, try a starry sky or snowy scene, for a dark or light look, respectively.

  • Apps with dark mode and/or font size options: Apps that focus on reading and navigation often have their own accessibility-enhancing options. Apple’s iBooks and Amazon’s Kindle app allow you to change font size, and even typeface, as well as changing the background or text color of what you’re reading. Seek out apps that compensate for what might be missing in your phone’s operating system, or that simply offer a better experience.

Get the Most from your Phone

The good news about smartphones is that they all provide features to support those with low-vision or whose eyesight has simply changed due to age. Your challenge is to try out as many of these features as possible, and decide which ones are right for you.

For tips and instruction on how to use smartphone (Iphone/Android) if you have low vision:

How a visually impaired person can use a smartphone

How To Set Up An Android Phone/Tablet For Low 

How I Use My iPhone 7 Plus | Life, Legally Blind