Discovery

As autumn takes on the majestic beauty of its fall colors, school children remind us of the explorer Columbus on his October holiday.  We remember how much courage it must have taken for men to set sail from Spain and cross the Atlantic in search for new lands and treasure.  As the days became months, the sailors on the three small ships began to believe that they were about to fall off the face of the earth convinced that the world was flat and that monsters were waiting on the other side of the horizon.

In many ways the search for breakthroughs in vision have been just as frightening and just as surprising.  It wasn’t that long ago when cataract surgery required patients to be hospitalized for days at a time lying perfectly still while their new lenses gradually settled.  When I was a baby suffering from glaucoma, there were no drugs available to ease the crippling headaches I’ll never forget.  Diabetic retinopathy and wet macular degeneration had no possibility for control until gifted researchers began to apply stem cells, gene therapy, and nutraceuticals.  Much like the exploration of Columbus, most forms of blindness are moving toward remarkable and dynamic breakthroughs.

Research supported by Discovery Eye Foundation is now on the cutting edge of unlimited possibilities that someday may dynamically improve the vision and the lives of patients and their families.  Our work can only continue with your support.  Please join us as we explore and discover new worlds of vision and hope.

 

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

September is Healthy Aging Month

Healthy Aging Month is an annual health observance designed to focus national attention on the positive aspects of growing older.  Aging is a process that brings many changes. Vision loss and blindness, however, do not have to be one of them. There are several simple steps you can take to help keep your eyes healthy for the rest of your life.

Eye diseases often have no early symptoms, but can be detected during a comprehensive dilated eye exam.  A comprehensive dilated eye exam is different from the basic eye exam or screening you have for glasses or contacts. By dilating the pupils and examining the back of the eyes, your eye care professional can detect eye diseases in their early stages, before vision loss occurs. By performing a comprehensive eye exam, your eye care professional can check for early signs of –

Here are some other tips to help maintain healthy vision and body now and as you age:

  • Eat a healthy, balanced diet. Loading up on fruits and vegetables can help keep your eyes healthy and disease free.
  • Maintain a healthy weight. Being overweight increases your risk for heart disease and diabetes. Complications from diabetes, such as diabetic retinopathy or glaucoma, can eventually lead to vision loss.
  • Don’t smoke. Smoking increases your risk for age-related macular degeneration, cataract, and other systemic diseases, including cancer. Wear protective eyewear when outdoors. Protecting your eyes from the sun’s ultraviolet rays when you are outdoors is important for your eye health. Choose sunglasses that block 99 to 100 percent of both UV-A and UV-B radiation.

Even if you are not experiencing vision problems, visiting an eye care professional regularly for a comprehensive dilated eye exam is the most important thing you can do to reduce your risk of vision loss as you age.

 

Download “Everyone’s vision can change with age”
A handout with explanation on how vision can change with age.

Children’s Eyes

It’s said that the “eyes are the windows to the soul.”  If that is true, looking into the eyes of a child, it’s easy to see the beauty and innocence that all of us wish could be more a part of the world they will live in.

I’ve also heard that there is a wonder found in those eyes – a curiosity that opens the child’s brain and heart to all of life’s joys and potentials. 

The thought that those eyes could be threatened through accident or disease is a painful reality that all of us at Discovery are working to prevent through all of our cutting-edge research with your on-going support.

All too often I have been present in an ophthalmologist’s office when a caring doctor is forced to tell a family that there is a major problem with their baby’s vision.  Diseases of the retina such as glaucoma, or retinitis pigmentosa, are joined by diseases of the cornea like keratoconus.  It’s even worse when a family has to hear the diagnosis is retinoblastoma – or a cancer of the eye.  In these personal and painful moments, a family’s entire life is forever changed and their child’s struggle with vision will remain on-going and difficult.

August is “Children’s Eye Safety” month, and I can’t think of anything else more important to protect.  The eyes of a child are beautiful, full of innocence and love.  So, let’s make sure that they will continue to see the world with beauty and clear vision. 

The Discovery Eye Foundation is committed to finding the answers that will preserve the vision of millions of people.  Our groundbreaking research needs your help to move forward! 

To learn how you can help, click here Ways to Help DEF or click the button below to donate online. 
DonateNow

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

INDEPENDENCE

As America celebrates its 243th birthday, I find myself thinking about what it means to be independent.  Because I was born blind, I was told early on that I would quite likely spend my life as a dependent person. I suppose it’s fair to say that I’ve proved I can be independent, and for that, I am very grateful.

I came to learn about the world as a blind person, and so I never thought very much about what I was missing without having the ability to see. In my role as the Ambassador of Vision for the Discovery Eye Foundation, I spend a lot of time talking to people who are losing or have lost their sight later in life. I am amazed to learn how truly dependent they are as they work to rehabilitate their lives after the loss of vision. They tell me that even the smallest tasks in daily life become major obstacles.

A woman recently told me, “there is a constant fear of falling, even in a familiar place like my own house.  I am just not sure of where the steps are.  I hate to have to ask people to put my clothes together in the right color combinations and learn to cook and be comfortable in my own kitchen.  It feels impossible to get anything done.”

The most touching thing I ever heard was when a loving grandfather told me that he was having trouble remembering what his grandchildren’s faces looked like.

Let me hasten to say that many people who lose their vision do make extraordinary adjustments, but for all of them, the road back to independence is difficult, arduous, and sometimes impossible. At the Discovery Eye Foundation, we remain committed to funding the research that will hopefully preserve vision and provide the independence that all of us wish for and deserve.

 

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

Low Vision

Low vision is the term used to describe significant visual impairment that can’t be corrected fully with glasses, contact lenses, medication or eye surgery.  Low vision causes a person to be unable to accomplish some daily tasks due to sight impairments. Low vision occurs when an individual struggles with any of the following common activities:

  • Reading
  • Everyday tasks like personal grooming
  • Viewing photos
  • Recognizing faces

Millions of Americans experience a normal loss of vision as they get older and the number of individuals who develop vision problems due to health conditions is projected to continue to rise.

There are many things that can cause low vision, including:

A few simple approaches can be:

  • Getting an eye exam
  • Update your reading glasses
  • Use bright light for reading

If these do not work for you, ask your eye care professional for help or ask for a referral to a low vision specialist.

Low Vision Technology 

Individuals with eye disease related to age, or vision compromised due to injury, may benefit from the usage of low vision devices.

There are two primary categories for low vision devices: Magnifiers for viewing things and objects that are close to you (magnifying lenses or machines), and magnifiers used for viewing objects and images at a distance (telescopic lenses). Many lighted magnifiers for close objects improve readability by increasing illumination.  With the advances in technology, many low vision devices are available to provide multiple function (near and distance) magnification and visual aid.

Technology is advancing to meet the growing needs of people with low vision impairment. There are a number of products that can help individuals with low vision. While considering the correct vision enhancer, keep in mind a few objectives:

  • What is the visual ability of the individual? Low vision aids are created with different options for specific low vision needs.
  • What tasks will the visual enhancer be used for? Find out what each product is best used for to decide if it will meet the needs of the individual.
  • Is the device easy to use? The right device should be easy for you to use.
  • How much does it cost? The cost of low vision aids can vary depending on a number of factors.

Popular products include:

Portable magnifiers and lighted magnifiers- offer magnified reading on the go. Perfect for menus, shopping lists, label reading, and more, portable magnifiers can fit in your pocket, purse, or be worn on the belt for quick, easy use.

 

Wearable magnifiers – wearable technology is the future for those with low vision who live an active lifestyle.  Wearable options make it possible to see and take part in everyday tasks, such as reading and recognizing faces.

 

Transportable magnification screens– are perfect for close up viewing as well as distance viewing. These great viewers offer great flexibility, from watching TV to using the mirror image feature for self-viewing. There are APPS for smart phones that can be used to magnify reading material.

  

Desktop devices for reading books, bills or letters – these have large, bright screens. A reading table offers visual aid for reading books, optional computer connectivity and more. This family of portable magnification units offers up to 75x magnification.

 

 

Consult a Low Vision Specialist–Consider making an appointment with a trained low vision specialist if you have specialized needs. They are available in larger cities or can be found by contacting The Braille Institute or by an internet search. Talk with your low vision specialist to find out which is right for you and where you can find them.

In addition to low vision devices and good lighting, inexpensive non-optical adaptive aids can assist with routine daily activities. These devices include:

  • Large-print cookbooks
  • Large-numbered playing cards, clocks, telephones and watches
  • Electronic “talking” clocks, kitchen timers, thermometers, blood pressure meters and even pill bottles
  • Large felt-tip pens and wide-lined paper for writing notes
  • Color-coded pill boxes
  • Signature guides help in writing your signature in the correct place

Many of these items can be found at your local drugstore, discount store or bookstore. Your low vision specialist can recommend retail sources for non-optical adaptive aids.

Vision loss can definitely be alarming but learning how to adapt, with the aid of low-vision specialists, can result in continued independence.  As low vision aids are tools focused on helping with the physical aspect, it is also important to seek the help of a counselor for psychological counseling if needed or join a support group, that may provide the help you need. Finally, maintaining a social network and asking for help will enrich your life, and help maintain your independence and quality of life.

Resources:
www.enhancedvision.com
www.allaboutvision.com
www.nei.nih.gov
www.brailleinstitute.org
www.visionaware.org
www.aao.org
www.amd.org
www.californiaphones.org
 

 

 

 

 

 

IN MY MOTHER’S EYE

There is an old Irish ditty I often heard as a little boy.  It goes something like this:

“One bright and guiding light that taught me wrong from right I found in my mother’s eyes. Those baby tales she told of roads all paved with gold I found in my mother’s eyes”.

As a blind child there was so much I found in my mother’s eyes.  From as early as I can remember, she read me stories that spanned from Robert Lewis Stephenson’s adventures like “Treasure Island” to the book that always made both of us cry – “Black Beauty.”

As a teenager and young adult, her eyes made it possible for me to venture into the world knowing as she liked to say…”dressed to the nines.” And then, when I married my wife, Patty, my mother had strong opinions about the choice of tuxedo I should wear on our wedding day.  I can still remember hearing her talk about how much she loved to see the first smiles on the faces of our children, Blythe & Tom. 

As she grew older, it was her eyes that kept her connected to the world.  Every morning, she read her Boston Globe from cover to cover, and on afternoon television she never missed her Soap Operas – “The Guiding Light,” and “Search for Tomorrow.” And then, there was the NBC Nightly News with her on-going crush on Tom Brokaw.

April is Women’s Eye Health Month along with celebrating the need for Sports Eye Safety.  I can still remember my mother crying when she watched Cleveland Indian’s left-handed pitcher Herb Score hit with a line-drive costing him his sight.  Research goes hand in hand with eye-safety to preserve vision.  The Discovery Eye Foundation is committed to finding the answers that will preserve vision and allow women and mothers the blessing of seeing the smiles on the faces of the children they love.

 

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

My Best Gift!

The other day my daughter Blythe asked me which Christmas I consider to be my favorite.  I had to think a minute, because as a family, the Sullivan’s have had some great ones.  I was about to say the first time you and your brother Tom were old enough to really get into Santa, being absolutely sure that the fat man brought your presents right down the chimney.  I was about to say that, and then I remembered. 

The greatest Christmas I ever enjoyed was a ski trip in Winter Park, Colorado, when our children were teenagers and our friend, the marvelous Betty White, joined us for a Christmas Eve sleigh ride none of us will ever forget.  The night was perfect.  It had snowed earlier that day, and the air had a feeling of Christmas that you could almost taste.  Oh, sure, it was cold, but we were bundled up under tons of blankets as two beautiful Clydesdale horses with bells jingling took us through the woods to a magical barn where dinner would be served and carols sung. 

It was on the way home that my Christmas was made complete.  We had stopped to let the horses breathe, and everyone was quiet, just allowing the feeling of togetherness envelope us in that special night.  It was Betty who broke the silence. 

“Tom,” she said almost to herself, “I wish I may, I wish I might, let you see the stars tonight.  I feel like we could almost reach up and touch them.  That’s how bright and close they are.  I guess when you’re this high in the Rocky Mountains, it just feels like they’re right here.”

I could hear how much my friend wanted me to see such a heavenly display, but we both knew that could never happen.  I have no complaint about being blind, no one could have a better life, but I would be lying if I didn’t admit at this holiday season that I’d love to be able to take it all in, all the special sights of Christmas. 

Every day in laboratories around this country, researchers are working to solve the multiple eye diseases that make it impossible for millions of people to see the joys of Christmas.  At this holiday season, my best gift would be that all of us donate to the Discovery Eye Foundation with its goal to preserve vision and eradicate blindness around the world.  During this season of giving, may your hearts be light and your sight be bright. 

Merry Christmas!

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

 

Our Greatest Fear

The most intimate moment in the life of a parent happens as darkness overcomes the day and you tell your children a bedtime story, tuck them into bed, and kiss them goodnight.  For years, our son Tom needed a night light to eliminate his fear of the dark and allow him to sleep.

The other day I had the privilege of referring our friend Suzanne Thornton to Dr. Sameh Mosaed, a researcher and practicing physician at the Gavin Herbert Eye Institute (GHEI) with a special interest in glaucoma. Over lunch our friend Suzanne candidly talked about her overwhelming sense of fear at her loss of vision, the recent falls she had taken, and the steps up or down she couldn’t see.  Thankfully Dr. Mosaed is very confident in Suzanne’s prognosis based on the cutting edge improvement in surgical outcomes for glaucoma due to her research at GHEI.

For 8 years I served as a member of the Academy of Ophthalmology’s Foundation Board.  In that time we conducted a number of studies in all areas of vision preservation.  The one that I believe was most meaningful occurred when we asked thousands of people to express what frightened them most in life.  Frankly, I was really surprised at the results of the study.  I was sure that people would say maybe stage four cancer, or ALS, or some other terminal disease would be the thing that would frighten them the most.  I would have imagined that they might talk about the loss of a loved one or even the fear of a natural disaster.  The results of the study were very clear.  62% of all the participants said that the loss of vision was the single most frightening possibility they would ever have to face.

The Discovery Eye Foundation is committed to relieving people of their greatest fear by supporting the research that someday may eliminate most forms of blindness.  We remain grateful for all of your support as we strive to overcome people’s greatest fear, the loss of sight

 

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

I Can Only Imagine

I can only imagine my wife’s beautiful face.  Oh sure, I’ve touched it and kissed it many times.  I’ve felt the lines with the tips of my fingers, tracing our lives together, and I’ve heard her smile.  I understand that’s not really seeing it.  It’s not seeing her eyes as they sparkle with something funny I said; or, when she looks at me with love reserved only for those who are truly in love.

She’s often tried to explain the flash and colors of a sunset and the cotton softness of clouds as they drift across the sky.  And, what about a rainbow made up of all the colors that somehow promise all of us that things in the world will get better. 

How amazing it would be to see my daughter Blythe skiing her favorite Colorado Mountain trail or my son Tom riding a California wave, both so secure and happy enjoying the sports they love. 

There is so much more I wish I could see, but it’s not going to happen because I am blind.  I am left with only imagining what it’s like to have the gift of sight.

I can only empathize with how a person feels when their vision is threatened by glaucoma or diabetic retinopathy, retinitis pigmentosa, and the most devastating of all, macular degeneration.

At the Discovery Eye Foundation (DEF) our researchers are working every day to overcome the loss of vision and preserve your ability to treasure all the beauty that surrounds you.  I’ve heard it said that the eyes are the windows to the soul.  I don’t know if that’s true, but I am sure that they are the single most important sense in the group of five, and that saving vision is a cause that must be supported.

DEF is committed to that mission, and with your help, answers to all forms of eye disease will be discovered.  It’s up to all of us to support the research that’s bringing us ever closer to those solutions.

If you want to help, please click the button below or download donation form to donate by mail, click here: DEF donation form

DonateNow 

 

 

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

September is Healthy Aging Month

 

Today, people are living longer than ever before so it’s important to be proactive and take responsibility for your health as you age.  

Like any other organ in your body, your eyes do not stay the same as you get older. Vision changes are normal with age but vision loss and blindness are not.  Older adults are at higher risk for certain eye diseases and conditions, including age-related macular degeneration, cataract, diabetic retinopathy, glaucoma, dry eye, and low vision.  To continue to enjoy healthy vision as you advance in years, it’s important to have a comprehensive dilated eye examination with an ophthalmologist or optometrist on a regular basis.

Here are some other tips to maintain healthy vision now and as you age:

  • Eat a healthy, balanced diet. Fruits and vegetables can help keep your eyes healthy. Visit our website for healthy eye recipes, click here Eye Cook.

 

 

  • Maintain a healthy weight. Being overweight increases your risk for diabetes. By exercising regularly, you can help keep your body healthy and prevent vision loss. 

 

 

 

  • Don’t smoke. Smoking increases your risk for age-related macular degeneration, cataract, and other eye diseases and conditions that can damage the optic nerve.

 

 

 

  • Wear protective eyewear when outdoors. Protecting your eyes from the sun’s ultraviolet rays when you are outdoors is vital for your eye health.  Wearing sunglasses that block 99 to 100 percent of both UV-A and UV-B radiation.

 

 

  • Know your family history.  Talk to your family members about their eye health history. It’s important to know if anyone has been diagnosed with a disease or condition since many are hereditary, such as glaucoma, macular degeneration, and diabetes . This will help determine if you are at higher risk for developing an eye disease or condition.

 

  • Consider a multivitamin. Vitamins C, E and the mineral zinc have been shown to promote eye health.  Vitamins with Lutein and Zeaxanthin have been known to help patients with moderate to severe age-related macular degeneration.

 

  • Give your eyes a rest.  If you spend a lot of time at the computer or focusing at any one distance, you sometimes forget to blink, resulting in dryness and eye fatigue.  Every 20 minutes, look away about 20 feet in front of you for 20 seconds. This can help reduce eyestrain. Consider using a lubricant eye drop during long periods of intense eye use and rest your eyes for 5 minutes.

 

You can’t stop time, but you can take care of your eyes so that they remain healthy as you age. Having a healthy vision can be possible at any age!