Our Greatest Fear

The most intimate moment in the life of a parent happens as darkness overcomes the day and you tell your children a bedtime story, tuck them into bed, and kiss them goodnight.  For years, our son Tom needed a night light to eliminate his fear of the dark and allow him to sleep.

The other day I had the privilege of referring our friend Suzanne Thornton to Dr. Sameh Mosaed, a researcher and practicing physician at the Gavin Herbert Eye Institute (GHEI) with a special interest in glaucoma. Over lunch our friend Suzanne candidly talked about her overwhelming sense of fear at her loss of vision, the recent falls she had taken, and the steps up or down she couldn’t see.  Thankfully Dr. Mosaed is very confident in Suzanne’s prognosis based on the cutting edge improvement in surgical outcomes for glaucoma due to her research at GHEI.

For 8 years I served as a member of the Academy of Ophthalmology’s Foundation Board.  In that time we conducted a number of studies in all areas of vision preservation.  The one that I believe was most meaningful occurred when we asked thousands of people to express what frightened them most in life.  Frankly, I was really surprised at the results of the study.  I was sure that people would say maybe stage four cancer, or ALS, or some other terminal disease would be the thing that would frighten them the most.  I would have imagined that they might talk about the loss of a loved one or even the fear of a natural disaster.  The results of the study were very clear.  62% of all the participants said that the loss of vision was the single most frightening possibility they would ever have to face.

The Discovery Eye Foundation is committed to relieving people of their greatest fear by supporting the research that someday may eliminate most forms of blindness.  We remain grateful for all of your support as we strive to overcome people’s greatest fear, the loss of sight

 

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

I Can Only Imagine

I can only imagine my wife’s beautiful face.  Oh sure, I’ve touched it and kissed it many times.  I’ve felt the lines with the tips of my fingers, tracing our lives together, and I’ve heard her smile.  I understand that’s not really seeing it.  It’s not seeing her eyes as they sparkle with something funny I said; or, when she looks at me with love reserved only for those who are truly in love.

She’s often tried to explain the flash and colors of a sunset and the cotton softness of clouds as they drift across the sky.  And, what about a rainbow made up of all the colors that somehow promise all of us that things in the world will get better. 

How amazing it would be to see my daughter Blythe skiing her favorite Colorado Mountain trail or my son Tom riding a California wave, both so secure and happy enjoying the sports they love. 

There is so much more I wish I could see, but it’s not going to happen because I am blind.  I am left with only imagining what it’s like to have the gift of sight.

I can only empathize with how a person feels when their vision is threatened by glaucoma or diabetic retinopathy, retinitis pigmentosa, and the most devastating of all, macular degeneration.

At the Discovery Eye Foundation (DEF) our researchers are working every day to overcome the loss of vision and preserve your ability to treasure all the beauty that surrounds you.  I’ve heard it said that the eyes are the windows to the soul.  I don’t know if that’s true, but I am sure that they are the single most important sense in the group of five, and that saving vision is a cause that must be supported.

DEF is committed to that mission, and with your help, answers to all forms of eye disease will be discovered.  It’s up to all of us to support the research that’s bringing us ever closer to those solutions.

If you want to help, please click the button below or download donation form to donate by mail, click here: DEF donation form

DonateNow 

 

 

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

The Human Drama

All of us are players in the human drama, and there are moments when we get to observe it up close and very personal. I was in Chicago, preparing to speak in an ophthalmology practice. As I often do, I arrived early to sit in the waiting area and work to get a feel for the energy and style of the practice. I didn’t mean to overhear their conversation, but as I listened, I was deeply touched by their love and in that moment, their fear.

I learned that Charlie was 88 and Rose was 86. I am sure they were holding hands as Rose was saying “Oh, Charlie, I am so sorry about the falls I have had. I just can’t see the step from the kitchen into the family room.”

Charlie tried to comfort her. “It’s alright Dear, the Doctor will give us the answers, and I am sure you’ll be better.”

I didn’t speak to Charlie over the next 40 minutes believing that I would be intruding but sure that he was living every second of the exam going on just a few steps away.

When Rose exited the Doctor’s office, she was supported by the Doctor and a Tech who must have been holding her up because she collapsed into her husband’s arms.

“I’m sorry,” she kept saying.  “I am sorry Charlie. It’s Macular Degeneration.  And, the Doctor says there’s very little he can do for me.”

I could hear Charlie rubbing his wife’s shoulders and telling her that everything would be alright. But, Rose kept saying “I know we’ll have to sell the house and move into something smaller, and I am going to be blind Charlie. Blind.”

Moments like this are happening across the country in ophthalmology and optometry practices every day. 30% of adults, age 60 and older, suffer from this horrible disease, and only through research will answers be found.

The Discovery Eye Foundation is committed to finding those difficult answers and making it possible for people like Rose to see the faces of loved ones for many years to come.

 

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

 

September is Healthy Aging Month

 

Today, people are living longer than ever before so it’s important to be proactive and take responsibility for your health as you age.  

Like any other organ in your body, your eyes do not stay the same as you get older. Vision changes are normal with age but vision loss and blindness are not.  Older adults are at higher risk for certain eye diseases and conditions, including age-related macular degeneration, cataract, diabetic retinopathy, glaucoma, dry eye, and low vision.  To continue to enjoy healthy vision as you advance in years, it’s important to have a comprehensive dilated eye examination with an ophthalmologist or optometrist on a regular basis.

Here are some other tips to maintain healthy vision now and as you age:

  • Eat a healthy, balanced diet. Fruits and vegetables can help keep your eyes healthy. Visit our website for healthy eye recipes, click here Eye Cook.

 

 

  • Maintain a healthy weight. Being overweight increases your risk for diabetes. By exercising regularly, you can help keep your body healthy and prevent vision loss. 

 

 

 

  • Don’t smoke. Smoking increases your risk for age-related macular degeneration, cataract, and other eye diseases and conditions that can damage the optic nerve.

 

 

 

  • Wear protective eyewear when outdoors. Protecting your eyes from the sun’s ultraviolet rays when you are outdoors is vital for your eye health.  Wearing sunglasses that block 99 to 100 percent of both UV-A and UV-B radiation.

 

 

  • Know your family history.  Talk to your family members about their eye health history. It’s important to know if anyone has been diagnosed with a disease or condition since many are hereditary, such as glaucoma, macular degeneration, and diabetes . This will help determine if you are at higher risk for developing an eye disease or condition.

 

  • Consider a multivitamin. Vitamins C, E and the mineral zinc have been shown to promote eye health.  Vitamins with Lutein and Zeaxanthin have been known to help patients with moderate to severe age-related macular degeneration.

 

  • Give your eyes a rest.  If you spend a lot of time at the computer or focusing at any one distance, you sometimes forget to blink, resulting in dryness and eye fatigue.  Every 20 minutes, look away about 20 feet in front of you for 20 seconds. This can help reduce eyestrain. Consider using a lubricant eye drop during long periods of intense eye use and rest your eyes for 5 minutes.

 

You can’t stop time, but you can take care of your eyes so that they remain healthy as you age. Having a healthy vision can be possible at any age! 

A New Commitment to Vision

Meet Tom Sullivan – DEF’s Ambassador of Vision

Over the last 40 years, I’ve been committed to working on behalf of blind children and their families.  My involvement has spanned the entire gamut of participation – from direct involvement in the classroom and counseling parents to hosting organized 10K races and celebrity golf tournaments that carried my name.  In that time, my wife and I raised just over $8 million thanks to the generosity of so many people.  Though my commitment to this cause has not changed, I’ve chosen to take on a new challenge that has in every way re-energized my passion. 

I’ve recently become the Ambassador of Vision for the Discovery Eye Foundation (DEF), a remarkable organization that funds cutting edge research that I believe someday will eliminate many forms of blindness.  The principle reason for my enthusiastic commitment is largely due to the fact that DEF directly funds researchers and avoids institutional restrictions.

As of this blog, DEF is engaged in ongoing efforts to understand 5 main eye diseases – Retinitis Pigmentosa, Macular Degeneration, Keratoconus, Diabetic Retinopathy, and Glaucoma.  I can honestly tell you that breakthroughs are not only on the horizon, but in many cases they are imminent.  Over the weeks and months I’ll be telling you much more, specifically about our individual research projects.  

Any help you may choose to give on behalf of people struggling with vision loss will be deeply appreciated. I look forward to having many of you join my fight for sight. Your help can make a difference! Click here to donate.

 

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

 

 

A Second Vision

Kristin McDonald

For the last few years Kristin McDonald, a former actress and television spokeswoman, has been applying her make-up without the aid of her eyes due to retinitis pigmentosa, a condition that reduces a person’s peripheral vision until all that is left is a pinpoint of sight.

Today, she is in a first stage study that is offering her and others hope that the injection of stem cells might be the mechanism that could slow, and maybe even halt the effects of this horrible disease. Discovery Eye Foundation helped support many of the preliminary translational studies necessary to bring the clinical trial to the FDA and get this exciting, novel approach to the patients.

I am Tom Sullivan, Ambassador of Vision for the Discovery Eye Foundation, and I was rocked when my phone rang recently and I heard the sound of my friend Kristin crying.

“What’s the matter?” I asked with real concern.

Her tears were quickly replaced by laughter, joyous laughter.

“It might be working,” she said, “I mean, the cells just might be having an impact.”

“Meaning your feeling change in your vision?” I asked. 

“Tom,” she went on, “you won’t believe it. This morning when I was getting dressed and putting on my make-up, I saw my mascara in the mirror. Listen, I am not trying to tell you I can see, but since the cells were injected, I can focus on a light and even begin to notice shadows.”

“And, now,” she laughed again, “maybe I can put my mascara on straight!”

Kristin has no illusions about how far the injection of cells will take her; but, she is encouraged, as are many of the other patients who are part of Dr. Henry Klassen’s clinical study helped by DEF’s early stage funding.  Maybe the old phrase really does apply – you probably know the one I mean – “hope springs eternal in the human breast.” That goes for the researchers, the patients, and all of us who treasure the gift of sight.

To read more about Kristin McDonald, visit her website at secondvision.net

 

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

Get Fit for Your Vision

It’s no secret that exercise is the best way to get in shape and to prevent serious health conditions. But did you know that you can actually exercise your way to healthy eyes too!?

Like your heart, brain, and lungs, your eyes are impacted by how you care for your body. By eating a healthy diet and exercising regularly, you can help prevent eye conditions linked to obesity and being out of shape.

Studies have found connections between regular exercise and reducing risks for several common eye ailments such as cataracts, age-related macular degeneration and glaucoma. Vision problems and eye disease also stem from high blood pressure and high cholesterol. A healthy diet and regular exercise are two of the most important steps you can take to lower both.

 

What you should know about the common eye diseases and exercise

Cataracts – Studies have found that a lack of physical activity may be associated with an increased risk of getting cataracts. Whether it’s a brisk walk around your block or a run through the park, both activities may be associated with decreased risk of age-related cataract.

Age-related Macular Degeneration (AMD)– Studies found that that those who were active and exercised three or more times a week were less likely to develop AMD.

Glaucoma – Doctors treat glaucoma by lowering high intraocular (eye) pressure. Research that focused on young adults found that moderate intensity, low-impact exercise led to significant reduction in eye pressure. Regular, ongoing exercise, such as walking or jogging, will help reduce eye pressure.

 

How to kick off your exercise routine

  • Start simple and set realistic goals. Keep a log of your goals and daily exercise routine, this will help you stick to your plan and track your progress.
  • Keep it fun.
  • Mix up your fitness routine with combinations of strength and cardio.
  • Not feeling all that motivated? Try jump-starting your fitness routine with a little Zumba or ballroom dancing; these are super fun ways to get in shape.
  • Head outside and roller skate, bike, or go on a hike—all are great calorie burners too.
  • If it’s too cold to go outdoors, pick up the latest yoga fitness DVD and create a calming atmosphere in your living room. Or you could try a circuit training fitness DVD for a more upbeat cardio workout.
  • Don’t get stuck in a rut: change up your routine frequently to get the biggest bang out of your exercise time!

No time for exercise? You can squeeze it in between everyday tasks such as:

  • Taking the stairs at work instead of the elevator.
  • Walking to your co-worker’s desk instead of sending an e-mail.
  • Doing lunges or squats while brushing your teeth.
  • Contracting and holding your abs while working on your computer – try for 10 contractions every hour.
  • Taking the dog for a long walk or jog—try doing a few lunges on the trail.

Stay active, get plenty of exercise and keep a healthy diet. When you’re tempted to slack off, or quit exercising all together, just remember how terrific you’ll look and feel when you keep moving. You’ll probably agree it’s worth working out a few minutes each day to reap the rewards of good health and great vision!

Click here for Eye Healthy Recipes.

Who’s On First For My Eye’s

The Difference Between an Optometrist and an Ophthalmologist

There are a number of players on your eye-health team, among them your optometrist and your ophthalmologist. It’s not always obvious, however, what position each plays and when you should call on which professional. 

 

Optometrists 

An optometrist holds a doctor of optometry (OD) degree. An optometrist generally completes a four-year college program in the sciences, plus four years of postgraduate professional training in optometry school.

Optometrists examine eyes for vision and health problems, and correct refractive errors with glasses and contact lenses. Some optometrists also provide low vision care and vision therapy. In the United States, optometrists may prescribe medications to treat certain eye problems and diseases, and their scope of care can differ by state. While not licensed to perform eye surgery, optometrists can play a role in pre- and post-operative care, if you have eye surgery performed by an ophthalmologist.

 

Ophthalmologists

An ophthalmologist is a medical doctor (MD) or a doctor of osteopathic medicine (DO), who specializes in eye and vision care. Ophthalmologists complete four years of college, four years of medical school, one year of internship and at least three years of residency in ophthalmology. Some ophthalmologists also have one or two years of additional training to become specialists in cornea, retina, glaucoma, oculoplastics, pediatrics or neuro-ophthalmology.

Ophthalmologists perform eye exams, diagnose and treat diseases, prescribe medications and perform eye surgery. They also prescribe corrective lenses.

 

Which one do I call?

Both optometrists and ophthalmologists perform routine eye exams, and are both trained to detect, diagnose and manage eye diseases. Both can prescribe corrective lenses, and both must fulfill continuing education requirements to maintain their licenses.

If your eyes are healthy, which type of professional to see is a matter of personal preference. If you already have a medical eye problem, such as diabetes, or a family history of AMD or glaucoma, you should consider seeing an ophthalmologist. While most optometrists offer medical treatment for common eye problems and chronic eye diseases, such as pink eye, dry eye or allergies, certain eye disorders require treatment by an ophthalmologist, particularly if you need surgery, laser therapy or other specialized care.

In some cases, your optometrist and ophthalmologist may work as a team. In such a setup, the optometrist is the equivalent of your primary-care doctor, who monitors your ongoing condition and care, and the ophthalmologist is your specialist, who manages your condition medically and/or performs surgery. For routine care, you may want to check with your insurance provider to see which, if either, professional they cover and for what services.

National Glaucoma Awareness Month

January is National Glaucoma Awareness Month –                                    An important time to raise awareness for this sight-robbing disease.

Glaucoma is an age-related disease and is the second leading cause of irreversible blindness in people over 40. Glaucoma is 6 to 8 times more common in African Americans than Caucasians. If you have a close blood relative with glaucoma, it raises your risk of getting it.

Glaucoma is the sneak thief of sight, since there are no symptoms and once vision is lost, it’s permanent. As much as 40% of vision can be lost without a person noticing. 

More than 3 million people in the United States and over 60 million people worldwide, have glaucoma. Experts estimate that half of them don’t know they have it. Combined with our aging population, we can see an epidemic of blindness looming if we don’t raise awareness about the importance of regular eye examinations to preserve vision.

How to Help Raise Awareness

In the United States, approximately 120,000 are blind from glaucoma. Here are three ways you can help raise awareness:

talk to your family about glaucoma awareness
Talk to your friends and family
  • Talk to friends and family about glaucoma. Do not keep it a secret. Let your family members know.
  • Get involved in your community, educational seminars, support groups, and more.

 

What is Glaucoma?

Glaucoma is a disease that causes damage to the major nerve of the eye called the opdevelopment of glaucomatic nerve, a part of the central nervous system that carries visual information from the eye to the brain.

The eye experiences a gradual increase of intraocular pressure (IOP) due to an imbalance of the fluid produced in the eye and the amount of fluid drained. Over time, elevated IOP can cause vision loss. The most common form of glaucoma is primary open angle glaucoma which affects about 3 million Americans. However, there are other types including narrow angle, congenital, normal tension, and secondary glaucoma.

There is no cure for glaucoma—yet. However, medication or surgery can slow or prevent further vision loss. The appropriate treatment depends upon the type of glaucoma among other factors. Early detection is vital to stopping the progress of the disease.

 

Risk Factors

How do you know if you are at risk for glaucoma? Those at higher risk include people of African, Asian, and Hispanic descent. Other high-risk groups include: people over 60, family members of those already diagnosed, diabetics, and people who are severely nearsighted.

Regular eye exams are especially important for those at higher risk for glaucoma, and may help to prevent unnecessary vision loss. In the most common form, there are virtually no symptoms. Vision loss begins with peripheral or side vision, so if you have glaucoma, you may not notice anything until significant vision is lost.

 

Getting your eyes checked by an ophthalmologist regularly will be the best way to detect glaucoma or any other eye disease early.