Children’s Eyes

It’s said that the “eyes are the windows to the soul.”  If that is true, looking into the eyes of a child, it’s easy to see the beauty and innocence that all of us wish could be more a part of the world they will live in.

I’ve also heard that there is a wonder found in those eyes – a curiosity that opens the child’s brain and heart to all of life’s joys and potentials. 

The thought that those eyes could be threatened through accident or disease is a painful reality that all of us at Discovery are working to prevent through all of our cutting-edge research with your on-going support.

All too often I have been present in an ophthalmologist’s office when a caring doctor is forced to tell a family that there is a major problem with their baby’s vision.  Diseases of the retina such as glaucoma, or retinitis pigmentosa, are joined by diseases of the cornea like keratoconus.  It’s even worse when a family has to hear the diagnosis is retinoblastoma – or a cancer of the eye.  In these personal and painful moments, a family’s entire life is forever changed and their child’s struggle with vision will remain on-going and difficult.

August is “Children’s Eye Safety” month, and I can’t think of anything else more important to protect.  The eyes of a child are beautiful, full of innocence and love.  So, let’s make sure that they will continue to see the world with beauty and clear vision. 

The Discovery Eye Foundation is committed to finding the answers that will preserve the vision of millions of people.  Our groundbreaking research needs your help to move forward! 

To learn how you can help, click here Ways to Help DEF or click the button below to donate online. 
DonateNow

Tom Sullivan
DEF’s Ambassador of Vision

sullivanvision.com

Cancer in the EYE: Unexpected Thought

When you think of cancer, most of us do not think about the eye or vision. Though rare, cancer can start inside or outside of the eye. If cancer starts inside the eyeball it’s called intraocular and if it starts outside the eye (eyelid or in the eye socket) then it’s called extraocular tumor. It can occur in both children and adults. Most major eye centers have specialists who are trained in the diagnosis and treatment of eye cancers.

Here are a few types of cancer in eye:

  • Eye Cancer in Children: The most common cancer seen in the eye of children is retinoblastoma. This occurs in children at very early age so these are the youngest cancer patients. This cancer starts inside the eye and affects the retinal cells. This is a cancer that presents very quietly, the child has no pain, no complaints and plays happily without any problem until one day parents notice that the pupil of the eye has some abnormal ‘White Glow’ (leukocoria) rather than the usual ‘red-eye’ reflection seen in a photo—that can be the first sign of retinoblastoma. So, it requires prompt evaluation by an ophthalmologist. Retinoblastoma is a curable cancer but if it is not treated on time, it can grow quickly and fill the eyeball. It can lead to loss of vision and life-threatening problems.

At the later stage of this cancer, the only one way to survive is to remove the eyeball (enucleation). Like many of other types of cancer, retinoblastoma has a genetic component so genetic testing needs to be done. The tumor begins with the RB1 gene mutation that stimulates retinal cells to develop into a tumor called a retinoblastoma. The RB1 mutation can be inherited from the parents, but in some cases it is sporadic and not inherited. There are various treatments such as surgery, chemotherapy, radiotherapy etc. to cure retinoblastoma cancer. Rarely it can spread beyond the eye. 

  • Eye Cancer in Adults: The development of a tumor in the back of the eye in adults can be from a metastatic cancer from elsewhere in the body or can arise in the eye itself. The most common primary eye cancer is called uveal melanoma and is a cluster of rapidly growing cells underneath the retina, which can lead to vision loss. The tumor can also appear as a dark black spot on the iris. Ideally the uveal melanoma can be treated when the tumor is still only in the eye.However, unfortunately, in approximately 50% of patients the uveal melanoma spreads (metastasis) to other part of the body, making it the most dangerous eye cancer in adults. Depending upon its location the uveal melanoma may not cause early symptoms but the patient may experience blurred vision or large numbers of floaters. The uveal melanoma can be diagnosed only when an ophthalmologist or eye care specialist examines your eye. What is the main cause of uveal melanoma? How it starts, grow and spread? These questions are still unanswered. The risk of this cancer increases in persons having fair skin (white), light eye color and inability to tan. There are certain changes in the genes linked to uveal melanoma. Currently the most common are GNAQ and BAP-1 gene mutations that are associated with greater risk of metastasis, where it spreads to other parts of the body. The standard treatment of this tumor is fine-needle aspiration biopsy (FNAB), brachytherapy (radioactive material inside a small capsule placed next to the tumor), radiation therapy and possibly enucleation. 
  • Metastasis to Eye: Finally, the other types of cancers found in the eyes are because of the spreading of a primary cancer (from a distant site such as the breast, lung or liver) to the eye.  Sometimes an eye exam can identify a metastatic tumor before the primary tumor is recognized elsewhere in the body.  Examples of cancers that spread to the eye are breast cancer in women and lung cancer in men. Less commonly, the prostate, kidney, gastrointestinal and blood cancers (leukemia and lymphomas) can spread to the eye.  Treatment depends on the type of cancer involved. 
  • Eye Damage from Chemotherapy: Eye problems can also develop through the side effects of chemotherapy or hormone therapies given for tumors outside the eye. When a person has any type of cancer, they often must undergo treatments with chemotherapeutic drugs.  A commonly used cancer drug is called cisplatin.  When treated with cisplatin, there can be damage to the retinal pigment epithelial cells in the inner part of the retina. Hemorrhages or bleeding can occur within the retina itself and vision can decrease temporarily. If a person is undergoing cancer treatments, it is a good idea to have their eyes checked, especially if they are having any vision problems. The chemotherapy does not actually cause cancers but only side effects.

Therefore, if you are having any decreased vision, it is always makes sense to have a good eye examination to identify any problems at early stage.

Low Vision

Low vision is the term used to describe significant visual impairment that can’t be corrected fully with glasses, contact lenses, medication or eye surgery.  Low vision causes a person to be unable to accomplish some daily tasks due to sight impairments. Low vision occurs when an individual struggles with any of the following common activities:

  • Reading
  • Everyday tasks like personal grooming
  • Viewing photos
  • Recognizing faces

Millions of Americans experience a normal loss of vision as they get older and the number of individuals who develop vision problems due to health conditions is projected to continue to rise.

There are many things that can cause low vision, including:

A few simple approaches can be:

  • Getting an eye exam
  • Update your reading glasses
  • Use bright light for reading

If these do not work for you, ask your eye care professional for help or ask for a referral to a low vision specialist.


Low Vision Technology 

Individuals with eye disease related to age, or vision compromised due to injury, may benefit from the usage of low vision devices.

There are two primary categories for low vision devices: Magnifiers for viewing things and objects that are close to you (magnifying lenses or machines), and magnifiers used for viewing objects and images at a distance (telescopic lenses). Many lighted magnifiers for close objects improve readability by increasing illumination.  With the advances in technology, many low vision devices are available to provide multiple function (near and distance) magnification and visual aid.

Technology is advancing to meet the growing needs of people with low vision impairment. There are a number of products that can help individuals with low vision. While considering the correct vision enhancer, keep in mind a few objectives:

  • What is the visual ability of the individual? Low vision aids are created with different options for specific low vision needs.
  • What tasks will the visual enhancer be used for? Find out what each product is best used for to decide if it will meet the needs of the individual.
  • Is the device easy to use? The right device should be easy for you to use.
  • How much does it cost? The cost of low vision aids can vary depending on a number of factors.

Popular products include:

Portable magnifiers and lighted magnifiers- offer magnified reading on the go. Perfect for menus, shopping lists, label reading, and more, portable magnifiers can fit in your pocket, purse, or be worn on the belt for quick, easy use.

 

Wearable magnifiers – wearable technology is the future for those with low vision who live an active lifestyle.  Wearable options make it possible to see and take part in everyday tasks, such as reading and recognizing faces.

 

Transportable magnification screens are perfect for close up viewing as well as distance viewing. These great viewers offer great flexibility, from watching TV to using the mirror image feature for self-viewing. There are APPS for smart phones that can be used to magnify reading material.

  

Desktop devices for reading books, bills or letters – these have large, bright screens. A reading table offers visual aid for reading books, optional computer connectivity and more. This family of portable magnification units offers up to 75x magnification.

 

 

Consult a Low Vision Specialist–Consider making an appointment with a trained low vision specialist if you have specialized needs. They are available in larger cities or can be found by contacting The Braille Institute or by an internet search. Talk with your low vision specialist to find out which is right for you and where you can find them.

In addition to low vision devices and good lighting, inexpensive non-optical adaptive aids can assist with routine daily activities. These devices include:

  • Large-print cookbooks
  • Large-numbered playing cards, clocks, telephones and watches
  • Electronic “talking” clocks, kitchen timers, thermometers, blood pressure meters and even pill bottles
  • Large felt-tip pens and wide-lined paper for writing notes
  • Color-coded pill boxes
  • Signature guides help in writing your signature in the correct place

Many of these items can be found at your local drugstore, discount store or bookstore. Your low vision specialist can recommend retail sources for non-optical adaptive aids.

Vision loss can definitely be alarming but learning how to adapt, with the aid of low-vision specialists, can result in continued independence.  As low vision aids are tools focused on helping with the physical aspect, it is also important to seek the help of a counselor for psychological counseling if needed or join a support group, that may provide the help you need. Finally, maintaining a social network and asking for help will enrich your life, and help maintain your independence and quality of life.

Resources:
www.enhancedvision.com
www.allaboutvision.com
www.nei.nih.gov
www.brailleinstitute.org
www.visionaware.org
www.aao.org
www.amd.org
www.californiaphones.org
 

 

 

 

 

 

IN MY MOTHER’S EYE

There is an old Irish ditty I often heard as a little boy.  It goes something like this:

“One bright and guiding light that taught me wrong from right I found in my mother’s eyes. Those baby tales she told of roads all paved with gold I found in my mother’s eyes”.

As a blind child there was so much I found in my mother’s eyes.  From as early as I can remember, she read me stories that spanned from Robert Lewis Stephenson’s adventures like “Treasure Island” to the book that always made both of us cry – “Black Beauty.”

As a teenager and young adult, her eyes made it possible for me to venture into the world knowing as she liked to say…”dressed to the nines.” And then, when I married my wife, Patty, my mother had strong opinions about the choice of tuxedo I should wear on our wedding day.  I can still remember hearing her talk about how much she loved to see the first smiles on the faces of our children, Blythe & Tom. 

As she grew older, it was her eyes that kept her connected to the world.  Every morning, she read her Boston Globe from cover to cover, and on afternoon television she never missed her Soap Operas – “The Guiding Light,” and “Search for Tomorrow.” And then, there was the NBC Nightly News with her on-going crush on Tom Brokaw.

April is Women’s Eye Health Month along with celebrating the need for Sports Eye Safety.  I can still remember my mother crying when she watched Cleveland Indian’s left-handed pitcher Herb Score hit with a line-drive costing him his sight.  Research goes hand in hand with eye-safety to preserve vision.  The Discovery Eye Foundation is committed to finding the answers that will preserve vision and allow women and mothers the blessing of seeing the smiles on the faces of the children they love.

 

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

LUTEIN AND ZEAXANTHIN

Why Lutein & Zeaxanthin are vital for healthy vision.

Good nutrition is important to keep your eyes healthy.  Researchers have linked two very important eye nutrients that play a key role in healthy vision.  Lutein (LOO-teen) and Zeaxanthin (zee-ah-ZAN-thin), both are potent antioxidants and are best known for protecting your eyes and may reduce your risk for macular degeneration and cataracts.

Lutein and zeaxanthin are two types of carotenoids (kuh-RAH-teh-noids), which are yellow to red pigments found widely in vegetables and other plants and lutein is a yellow pigment, in high concentrations it appears orange-red.

Both lutein and zeaxanthin can also be found in high concentrations in the macula of the human eye.  The macula is essential for vision. Lutein and zeaxanthin work as important antioxidants in this area by protecting your eyes from harmful free radicals. It’s thought that a reduction of these antioxidants over time can impair eye health.  Along with other natural antioxidants, including vitamin C, beta-carotene (vitamin A) and vitamin E, these important pigments guard the body from damaging effects of free radicals, which are reactive molecules that can destroy cells and play a role in many diseases.  It is also believed that lutein and zeaxanthin in the macula block blue light from reaching the underlying structures in the retina, thereby reducing the risk of light-induced oxidative damage that could lead to macular degeneration (AMD).

Unfortunately, the human body does not naturally make the lutein and zeaxanthin it needs. This is why getting daily amounts of lutein and zeaxanthin through your diet or nutritional supplements can help maintain good eye health.

 

Foods that Contain Lutein and Zeaxanthin

Diets rich in these two nutrients may help hold off age-related eye diseases. The best natural food sources of lutein and zeaxanthin are green leafy vegetables and other green or yellow vegetables. Among these, cooked kale and cooked spinach top the list.

Key sources of these carotenoids include kale, parsley, spinach, broccoli and peas. Orange juice, honeydew melon, kiwis, red peppers, squash and grapes are also good sources of lutein and zeaxanthin.

In addition, egg yolk may be an important source of lutein and zeaxanthin, as the high fat content of the yolk may improve the absorption of these nutrients.

For eye healthy recipes visit Eye Cook

Lutein and Zeaxanthin Supplements

Because of the benefits of lutein and zeaxanthin, many nutritional companies have added these carotenoids to their multiple vitamin formulas. Others have introduced special eye vitamins that are predominantly lutein and zeaxanthin supplements.

Some popular lutein and zeaxanthin supplements include:

  • MacuHealth with LMZ3 (MacuHealth LLC)
  • EyePromise Zeaxanthin (Zeavision)
  • ICaps Eye Vitamin Lutein & Zeaxanthin Formula (Alcon)
  • Macula Complete (Biosyntrx)
  • MacularProtect Complete (ScienceBased Health)
  • MaxiVision Ocular Formula (MedOp)
  • OcuGuard Plus (TwinLab)
  • Ocuvite (Bausch + Lomb

The source of lutein in many lutein supplements is marigold flowers, while for zeaxanthin it is often red peppers. If you choose a lutein and zeaxanthin supplement, make sure it’s a high quality product from a reputable dietary supplement company.

Be sure to keep in mind that individuals sometimes react differently to certain supplements, which can have unintended effects such as adverse reactions with medications. Consult with your physician or eye doctor before trying any vision supplements.

For Eye Healthy Recipes visit Eye Cook

Remember that taking dietary supplements does not replace a healthy diet. Eating a well-balanced diet that includes plenty of fruits and vegetables usually is the best way to get the important eye nutrients you need.

Age-Related Macular Degeneration Month

Have you ever noticed how many people, places, things, and even a rather unattractive groundhog are designated and honored with a day, a month, or a year?  Now, I am not putting down Punxsutawney Phil because I do want him to see his shadow and promise us an early spring.  In our designation of things, we also should pay homage to values and causes that are important in our history and our health.  I am glad that I am reminded every November of our Veterans on a special day or the Presidents who have served our nation.  Certainly Dr. King’s birthday and Black History Month place an appropriate focus on issues that society is still working to solve.

So, I was delighted when I heard that February is Age-Related Macular Degeneration Month.  More than any other eye disease AMD affects the largest number of people over 65 of European lineage.  In fact, as I write this piece, over 15 million Americans are struggling within its dry form, currently an incurable condition.  It’s projected that if we are not able to solve the riddle of AMD by the year 2050, the number of senior Americans with AMD will be more than 30 million.

The Discovery Eye Foundation is committed to finding the answer that will preserve the vision of millions of people.  Right now research supported by DEF at the Gavin Herbert Eye Institute, University of California Irvine, Medical School is on the cutting edge of promising breakthroughs that could make the difference in the lives of so many.  

Please join me in supporting this most worthy effort by contributing whatever you can to DEF and its important work.  Our vision may depend on your generosity.

 

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

My Best Gift!

The other day my daughter Blythe asked me which Christmas I consider to be my favorite.  I had to think a minute, because as a family, the Sullivan’s have had some great ones.  I was about to say the first time you and your brother Tom were old enough to really get into Santa, being absolutely sure that the fat man brought your presents right down the chimney.  I was about to say that, and then I remembered. 

The greatest Christmas I ever enjoyed was a ski trip in Winter Park, Colorado, when our children were teenagers and our friend, the marvelous Betty White, joined us for a Christmas Eve sleigh ride none of us will ever forget.  The night was perfect.  It had snowed earlier that day, and the air had a feeling of Christmas that you could almost taste.  Oh, sure, it was cold, but we were bundled up under tons of blankets as two beautiful Clydesdale horses with bells jingling took us through the woods to a magical barn where dinner would be served and carols sung. 

It was on the way home that my Christmas was made complete.  We had stopped to let the horses breathe, and everyone was quiet, just allowing the feeling of togetherness envelope us in that special night.  It was Betty who broke the silence. 

“Tom,” she said almost to herself, “I wish I may, I wish I might, let you see the stars tonight.  I feel like we could almost reach up and touch them.  That’s how bright and close they are.  I guess when you’re this high in the Rocky Mountains, it just feels like they’re right here.”

I could hear how much my friend wanted me to see such a heavenly display, but we both knew that could never happen.  I have no complaint about being blind, no one could have a better life, but I would be lying if I didn’t admit at this holiday season that I’d love to be able to take it all in, all the special sights of Christmas. 

Every day in laboratories around this country, researchers are working to solve the multiple eye diseases that make it impossible for millions of people to see the joys of Christmas.  At this holiday season, my best gift would be that all of us donate to the Discovery Eye Foundation with its goal to preserve vision and eradicate blindness around the world.  During this season of giving, may your hearts be light and your sight be bright. 

Merry Christmas!

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

 

Our Greatest Fear

The most intimate moment in the life of a parent happens as darkness overcomes the day and you tell your children a bedtime story, tuck them into bed, and kiss them goodnight.  For years, our son Tom needed a night light to eliminate his fear of the dark and allow him to sleep.

The other day I had the privilege of referring our friend Suzanne Thornton to Dr. Sameh Mosaed, a researcher and practicing physician at the Gavin Herbert Eye Institute (GHEI) with a special interest in glaucoma. Over lunch our friend Suzanne candidly talked about her overwhelming sense of fear at her loss of vision, the recent falls she had taken, and the steps up or down she couldn’t see.  Thankfully Dr. Mosaed is very confident in Suzanne’s prognosis based on the cutting edge improvement in surgical outcomes for glaucoma due to her research at GHEI.

For 8 years I served as a member of the Academy of Ophthalmology’s Foundation Board.  In that time we conducted a number of studies in all areas of vision preservation.  The one that I believe was most meaningful occurred when we asked thousands of people to express what frightened them most in life.  Frankly, I was really surprised at the results of the study.  I was sure that people would say maybe stage four cancer, or ALS, or some other terminal disease would be the thing that would frighten them the most.  I would have imagined that they might talk about the loss of a loved one or even the fear of a natural disaster.  The results of the study were very clear.  62% of all the participants said that the loss of vision was the single most frightening possibility they would ever have to face.

The Discovery Eye Foundation is committed to relieving people of their greatest fear by supporting the research that someday may eliminate most forms of blindness.  We remain grateful for all of your support as we strive to overcome people’s greatest fear, the loss of sight

 

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com

Beware of Costume Contacts

Costume Contact Lenses such as cat eyes or zombie may make your Halloween costume a bit more frightful although wearing those lenses without a prescription can be more terrifying, as it could result in vision loss or even blindness.

You can buy contact lenses, including decorative contact lenses, from your eye doctor or on the Internet.  It’s very important that you only buy contact lenses from a company that sells FDA-cleared or approved contact lenses and requires you to provide a prescription.  Even if you don’t wear corrective lenses you still need to get fitted properly.

Remember — Buying contact lenses without a prescription is dangerous!

Right now there are a lot of products that you can buy without a prescription but they may not be safe or legal.

You should NEVER buy lenses from:

  • street vendors
  • salons or beauty supply stores
  • boutiques
  • flea markets
  • novelty stores
  • Halloween stores
  • convenience stores
  • beach shops
  • internet sites that do not require a prescription

Know the Risks –

Wearing costume contact lenses can be risky, just like the contact lenses that correct your vision. Wearing any kind of contact lenses, including costume lenses, can cause serious damage to your eyes if the lenses are obtained without a prescription or not used correctly.

These risks include:

  • A cut or scratch on the top layer of your eyeball (Corneal Abrasion)
  • Allergic reactions like itchy, watery red eyes
  • Decreased vision
  • Infection
  • Blindness

Signs of possible eye infection:

  • Redness
  • Pain in the eye(s) that doesn’t go away after a short period of time
  • Decreased vision

If you have any of these signs, you need to see a licensed eye doctor (optometrist or ophthalmologist) right away!  An eye infection could become serious and cause you to become blind if it is not treated.

This Halloween season DEF wants to remind you of the importance of eye safety and to make sure to take the proper steps in ensuring the proper contact lenses. 

A New Commitment to Vision

Meet Tom Sullivan – DEF’s Ambassador of Vision

Over the last 40 years, I’ve been committed to working on behalf of blind children and their families.  My involvement has spanned the entire gamut of participation – from direct involvement in the classroom and counseling parents to hosting organized 10K races and celebrity golf tournaments that carried my name.  In that time, my wife and I raised just over $8 million thanks to the generosity of so many people.  Though my commitment to this cause has not changed, I’ve chosen to take on a new challenge that has in every way re-energized my passion. 

I’ve recently become the Ambassador of Vision for the Discovery Eye Foundation (DEF), a remarkable organization that funds cutting edge research that I believe someday will eliminate many forms of blindness.  The principle reason for my enthusiastic commitment is largely due to the fact that DEF directly funds researchers and avoids institutional restrictions.

As of this blog, DEF is engaged in ongoing efforts to understand 5 main eye diseases – Retinitis Pigmentosa, Macular Degeneration, Keratoconus, Diabetic Retinopathy, and Glaucoma.  I can honestly tell you that breakthroughs are not only on the horizon, but in many cases they are imminent.  Over the weeks and months I’ll be telling you much more, specifically about our individual research projects.  

Any help you may choose to give on behalf of people struggling with vision loss will be deeply appreciated. I look forward to having many of you join my fight for sight. Your help can make a difference! Click here to donate.

 

Tom Sullivan
DEF’s Ambassador of Vision
sullivanvision.com